CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 651 - 675 of 755

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1055-C18697	C18697	Imaging fat signal suppressor used method other text	The free-text field related to 'Imaging fat signal suppressor used method type' specifying other text. Type of method used to suppress fat signal in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F0008-C21113	C21113	Visit screening indicator	Indicator for screening during visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F2057-C21315	C21315	Quality of Life - Stigma illness other people lost job recent assessment scale	The scale representing how often people with the participant's illness lost their jobs when their employers found out about it lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F0025-C01703	C01703	Lab panel category	Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests and Tracking	False	General (For all diseases)	General (For all diseases)
F2052-C20729	C20729	Quality of Life - Overwhelm life assessment past week scale	The scale which represents how often the participant found that things in life were overwhelming in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F1062-C12728	C12728	Needle electromyography electrode type	Type of electrode used for the needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0004-C20394	C20394	Serious adverse event end date and time	Date (and time, if applicable and known) on which the serious adverse event discontinued/stopped	Supplemental	Serious Adverse Events	0	General (For all diseases)	General (For all diseases)
F0039-C04506	C04506	ECG right ventricular hypertrophy status	Status of right ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	General (For all diseases)	General (For all diseases)
F2050-C21201	C21201	Quality of Life - Plan keep appointment not weekly routine difficulty scale	The scale which represents the amount of difficulty the participant currently has in planning for and keeping appointments that are not part of their weekly routine (e.g., a therapy or doctor appointment, or a social gathering with friends and family), as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0009-C02304	C02304	Adverse event study intervention relatedness investigator assessment grade	Grade of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F2058-C21133	C21133	Quality of Life - Movement body wash dry ability scale	The scale which represents the extent to which the participant was able to wash and dry their body, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F2048-C21178	C21178	Quality of Life - Group social activity decrease complete past week scale	The scale representing how often the participant did fewer social activities with groups of people than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F1055-C10576	C10576	Imaging in plane resolution axis 1 measurement	Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2056-C20816	C20816	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale	The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Sleep Disturbance	True	General (For all diseases)	General (For all diseases)
F0020-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F1053-C10687	C10687	Imaging diffusion first b value	Value, in square millimeters per second, of the first b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2055-C20746	C20746	Patient-Reported Outcome Measurement Information System (PROMIS) - Current level friend activity satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F0013-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F2048-C21186	C21186	Quality of Life - Work home limit complete past week scale	The scale representing how often the participant was limited in doing their work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F1055-C10592	C10592	Imaging flow compensation indicator	Indicator of whether flow compensation was used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	General Core	False	General (For all diseases)	General (For all diseases)
F0020-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
F1053-C17795	C17795	Imaging diffusion third b value	Value, in square millimeters per second, of the third b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2055-C20755	C20755	Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability good satisfaction past week scale	The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)

Displaying 651 - 675 of 755

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.