CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 626 - 650 of 755
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02019 Study drug actual return count

Count of amount of study drug returned

Supplemental Study Drug Compliance General (For all diseases) General (For all diseases)
C21210 Quality of Life - Several repeat read past week scale

The scale representing how often the participant had to read something serveral times to understand it in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12696 Electrophysiology motor nerve segment name

The name of the segment used for the motor nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C21283 Quality of Life - Personal responsibility care ability disappointment past week scale

The scale which represents the extent to which the participant was disappointed in their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21187 Quality of Life - Work home decrease time period ability past week scale

The scale representing how often the participant had to do their work for shorter periods of time than usual for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C20741 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity time amount satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21147 Quality of Life - Family responsibility maintain past week scale

The scale representing how often the participant could keep up with their family responsibilities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21288 Quality of Life - Force awake morning past week scale

The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance

Supplemental Neuro-QOL Adult Bank - Sleep Disturbance General (For all diseases) General (For all diseases)
C20776 Quality of Life - Startle ease assessment past week scale

The scale which represents how often the participant was easily startled in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C12508 Imaging radio frequency coil function type

The function of the radio frequency (RF) coil used

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C20750 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21155 Quality of Life - Family need satisfaction problem past week scale

The scale representing how often the participant had trouble meeting the needs of their family in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C20404 Serious adverse event investigator assessment concurrent disorder specify text

The free-text field to specify the concurrent disorder that might have caused the serious adverse event, in the opinion of the principal investigator

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C20759 Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale

The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21163 Quality of Life - Friend activity satisfactory past week scale

The scale representing how often the participant was able to do all of the activities with friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C20415 Serious adverse event report complete date

Date when the report on the serious adverse event was completed

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C18719 Imaging slice orientation type other text

The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21331 Quality of Life - Movement single floor walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in walking around one floor of their home, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C12763 Electrophysiology tilt study heart rate change result

Heart rate changes experienced from a tilt test

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21267 Quality of Life - Friend regular activity limitation bother past week scale

The scale which represents the extent to which the participant was bothered by limitations in their regular activities with friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
Displaying 626 - 650 of 755

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.