CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 551 - 575 of 755
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00710 Tobacco current use indicator

Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time

 Supplemental Behavioral History False General (For all diseases) General (For all diseases)
C21271 Quality of Life - Family member activity level satisfaction past week scale

The scale which represents the extent to which the participant was satisfied with their current level of activity with family members in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C01013 Physical exam description text

Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined

 Supplemental Physical Exam False General (For all diseases) General (For all diseases)
C21175 Quality of Life - Community activity ability complete past week scale

The scale representing how often the participant was able to do all of the community activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C60380 Serious adverse event cause discontinue study indicator

Indicator of whether the serious adverse event caused the participant to be discontinued from the study

 Supplemental Serious Adverse Events 0 General (For all diseases) General (For all diseases)
C21122 Subject home phone number

The home phone number of the subject/participant

 Supplemental Participant/Subject Contact Information False General (For all diseases) General (For all diseases)
C10566 Imaging radio frequency coil name

Name of the radio frequency (RF) coil(s) used for the body part scanned

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C21252 Quality of Life - Satisfaction laugh humor recent assessment scale

The scale representing how often the participant could laugh and see the humor in situations lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C18809 Electrophysiology motor unit number estimation nerve other text

The free-text field related to 'Electrophysiology motor unit number estimation nerve type' specifying other text. Type of nerve where an electrical signal is measured with the MUNE (motor unit number estimation) technique

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C10682 Imaging anatomic site

Anatomic site of body part or anatomy scanned in the imaging study

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C10577 Imaging signal averages number

Number of signal acquisitions averaged in imaging acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C18770 Tobacco product used other text

The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

 Supplemental Behavioral History False General (For all diseases) General (For all diseases)
C21279 Quality of Life - Work people disappointment self-assessment past week scale

The scale which represents the extent to which the participant felt that they were disappointing to other people at work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C02212 Informed consent obtained date and time

Date (and time, if applicable and known) on which the participant/subject (or the legal representative on behalf of the participant/subject) agrees to participate in a protocol, treatment, or other activity by signing an informed consent document

 Supplemental Informed Consent and Enrollment False General (For all diseases) General (For all diseases)
C21183 Quality of Life - Work everything ability past week scale

The scale representing how often the participant could do everything for work that they wanted do (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C21112 Visit form name

Name of the form used during the visit

 Supplemental Visit Schedule False General (For all diseases) General (For all diseases)
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C21260 Quality of Life - Satisfaction live life fully recent assessment scale

The scale representing how often the participant felt they were living life to the fullest lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C15572 Imaging diffusion direction count

Count of diffusion directions in the associated diffusion imaging study

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C02202 Off study date and time

Date (and time, if applicable and known) when participant/subject completes study or is prematurely withdrawn from study (i.e., is not being followed and will not receive intervention/treatment)

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C12742 Electrophysiology neuromuscular jitter pair or endplate study count

Count of the pairs/endplates studied in the neuromuscular jitter study being described

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C21133 Quality of Life - Movement body wash dry ability scale

The scale which represents the extent to which the participant was able to wash and dry their body, as part of Neuro-QOL Upper Extremity

 Supplemental Neuro-QOL Adult Bank - Upper Extremity True General (For all diseases) General (For all diseases)
C21215 Quality of Life - Room Walked into room and forgot why past week scale

The scale representing how often the participant walked into a room and forgot what they meant to do or get there in the past 7 days, as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C02216 Exclusion criterion not met number

Exclusion criterion number(s) the participant/subject did not meet

 Supplemental Inclusion and Exclusion Criteria False General (For all diseases) General (For all diseases)
C12701 Electrophysiology motor nerve F-wave minimum latency value

The length of time needed for the impulse to travel from the site, to the spine, and back to the site measured during the motor nerve conduction study

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
Displaying 551 - 575 of 755

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.