CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 551 - 575 of 755
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20791 Quality of Life - Relax trouble assessment past week scale

The scale which represents how often the participant had trouble relaxing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C19070 Screening visit ineligibility primary other text

The free-text field related to 'Screening visit ineligibility primary reason' specifying other text. The primary reason identified during a screening visit which makes the potential participant/subject not eligible for a study

Supplemental Screening Log General (For all diseases) General (For all diseases)
C20554 Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity fatigue assessment past week scale

The scale representing how often the participant had to limit social activity because of being tired in the past 7 days, as part of the Quality of Life in Neurological Disorders(Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C20696 Quality of Life - Sadness assessment past week scale

The scale which represents how often the participant felt sad in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C12723 Electrophysiology repetitive nerve activation duration

Duration, in sec, of the activation technique used in the repetitive nerve study being recorded

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C00710 Tobacco current use indicator

Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C21304 Quality of Life - Stigma illness stranger stare recent assessment scale

The scale representing how often strangers tended to stare at the participant because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21196 Quality of Life - Death worry past week scale

The scale representing how often the participant worried about dying in the past 7 days, as part of Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C21122 Subject home phone number

The home phone number of the subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C20573 Quality of Life in Neurological Disorders (Neuro-Qol) - Overall weakness fatigue assessement past week scale

The scale representing how often the participant felt weak all over in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C20732 Quality of Life - Hopelessness assessment past week scale

The scale which represents how often the participant felt hopeless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C12731 Needle electromyography motor unit action potential area measurement

The area value of the motor unit action potential (MUAP) measure during needle electromyography

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C18770 Tobacco product used other text

The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C21312 Quality of Life - Stigma illness different feel compare other people recent assessment scale

The scale representing how often the participant felt different from others because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21204 Quality of Life - Organize difficulty scale

The scale which represents the amount of difficulty the participant currently has in getting things organized, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C10780 Electrophysiology anatomic site

Area of the body (e.g., nerve or muscle) where the type of electrophysiology study is performed

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21112 Visit form name

Name of the form used during the visit

Supplemental Visit Schedule General (For all diseases) General (For all diseases)
C18659 Unexpected adverse event indicator

Indicator of whether the adverse event is unexpected

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C04800 Death cause text

Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Report General (For all diseases) General (For all diseases)
C59687 COVID-19 first date

Date the participant/subject was first told or first thought that they had coronavirus disease 2019 (COVID-19)

Supplemental Medical History General (For all diseases) General (For all diseases)
C21285 Quality of Life - Personal responsibility care ability satisfaction past week scale

The scale which represents the extent to which the participant was satisfied with their ability to take care of personal and household responsibilities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21189 Quality of Life - Work limit complete past week scale

The scale representing how often the participant was limited in doing their work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C10576 Imaging in plane resolution axis 1 measurement

Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C10595 Imaging parallel acquisition used type

Type of the parallel acquisition method used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
Displaying 551 - 575 of 755

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.