CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 51 - 75 of 1696
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C02215 Study eligibility indicator

Indicator of whether the participant/subject is eligible for participation in the clinical research protocol according to its inclusion and exclusion criteria

Supplemental Inclusion and Exclusion Criteria General (For all diseases) General (For all diseases)
C56122 PROMIS - Smoking nicotine dependence tempt to smoke when driving scale

Scale related to an individual being tempted to smoke when he/she is driving, as part of the PROMIS Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers General (For all diseases) General (For all diseases)
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C55300 PROMIS - Negative consequences angry when drink scale

Scale related to the individual feeling angry when he/she drank, as part of the PROMIS Negative Consequences

Supplemental PROMIS Item Bank v1.0 - Alcohol: Negative Consequences General (For all diseases) General (For all diseases)
C55757 PROMIS - Smoking coping expectancies upset with someone cope scale

Scale related to an individual feeling that when he/she is upset with someone, a cigarette helps him/her cope, as part of the PROMIS Smoking Coping Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Daily Smokers General (For all diseases) General (For all diseases)
C20716 Patient-Reported Outcome Measurement Information System (PROMIS) - Bitter emotion assessment past week scale

The scale which represents how often the participant felt bitter about things in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental PROMIS Item Bank v1.1 - Anger General (For all diseases) General (For all diseases)
C55529 PROMIS - Applied Cognition abilities multitask scale

Scale related to an individual's ability to multi-task as easily as usual without extra effort, as part of PROMIS Applied Cognition Abilities

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - Abilities General (For all diseases) General (For all diseases)
C21116 Visit follow-up indicator

Indicator for a follow-up visit.

Supplemental Visit Schedule General (For all diseases) General (For all diseases)
C21266 Quality of Life - Family socialize ability disappointment past week scale

The scale which represents the extent to which the participant was disappointed in their ability to socialize with their family in the past 7 days, as part of Neuro-QOL Satisfaction with SRA.

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM).

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C55157 PROMIS - Alcohol use drink consumption indicator

Indicator of an individual's consumption of an alcoholic beverage within 30 days, as part of the PROMIS Alcohol Use

Supplemental PROMIS Item Bank v1.0 - Alcohol Use General (For all diseases) General (For all diseases)
C21170 Quality of Life - Leisure activity satisfactory complete past week scale

The scale representing how often the participant was able to do all of the leisure activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C20689 Patient-Reported Outcome Measure Information System (PROMIS) - form administered type

The specific PROMIS form type administered, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental PROMIS - Scoring General (For all diseases) General (For all diseases)
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Supplemental Social Status General (For all diseases) General (For all diseases)
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C21247 Quality of Life - Satisfaction life functional recent assessment scale

The scale representing how often the participant felt their life was worth living lately, as part of Neuro-QOL Positive Affect and Well-Being.

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C19551 Biomarker blood plasma specimen assessment type

Type of biomarker(s) assessed from blood serum/plasma samples.

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C56556 PROMIS - Cognitive Function had more problem converse other scale

Scale related to how often an individual has had more problems conversing with others in the past 7 days, as part of the PROMIS Cognitive Function

Supplemental PROMIS Item Bank v2.0 - Cognitive Function General (For all diseases) General (For all diseases)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C56310 PROMIS - Smoking negative psychosocial expectancies people respect less because smoke scale

Scale related to an individual believing people he/she cares about respect him/her less because he/she smokes, as part of the PROMIS Smoking Negative Psychosocial Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for Daily Smokers General (For all diseases) General (For all diseases)
C55830 PROMIS - Smoking emotional and sensory expectancies smoke relaxing scale

Scale related to an individual feeling as if smoking is relaxing, as part of the Smoking Emotional and Sensory Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Nondaily Smokers General (For all diseases) General (For all diseases)
C56503 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference tasks away from home scale

Scale which represents how much pain interfered with participant doing tasks away from home (e.g., getting groceries, running errands) over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.1 - Pain Interference General (For all diseases) General (For all diseases)
C55605 PROMIS - Emotional Distress depression sad scale

Scale related to the individual feeling sad, as part of the PROMIS Emotional Distress Depression

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) General (For all diseases) General (For all diseases)
C56055 PROMIS - Smoking nicotine dependence smoke more before situation no smoke scale

Scale related to an individual smoking more before going into a situation where smoking is not allowed, as part of the PROMIS Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Nondaily Smokers General (For all diseases) General (For all diseases)
C55308 PROMIS - Negative consequences headache after drink scale

Scale related to the individual having a headache after he/she drank, as part of the PROMIS Negative Consequences

Supplemental PROMIS Item Bank v1.0 - Alcohol: Negative Consequences General (For all diseases) General (For all diseases)
Displaying 51 - 75 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.