CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 451 - 475 of 740
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12752 Electrophysiology heart rate variability value

The heart rate variability with deep breathing measured during autonomic function testing

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21140 Quality of Life - Movement open prior open jar ability scale

The scale which represents the extent to which the participant was able to open previously opened jars, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21222 Quality of Life - Trouble concentrate past week scale

The scale representing how often the participant had trouble concentrating in the past 7 days, as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C12708 Electrophysiology H-reflex latency right value

The H-reflex duration of latency for the right side of the body

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C22703 Serious adverse event form completion indicator

Indicator of whether the Serious Adverse Event (SAE) form was completed following an adverse event

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Supplemental Physical Exam General (For all diseases) General (For all diseases)
C18494 Screening visit ineligibility primary reason

The primary reason identified during a screening visit which makes the potential participant/subject not eligible for a study

Supplemental Screening Log General (For all diseases) General (For all diseases)
C20399 Serious averse event end treatment indicator

Indicate whether the study was discontinued due to the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21328 Quality of Life - Movement low soft couch stand difficulty scale

The scale which represents the amount of difficulty the participant currently has in standing up from a low, soft couch, as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C12760 Electrophysiology quantitative sweat function proximal leg measurement

The amount of sweat collected on the proximal leg

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C20546 Quality of Life in Neurological Disorders (Neuro-Qol) - No energy fatigue asssessment past week scale

The scale representing how often the participant felt no energy in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C21230 Quality of Life - Clear telephone speech difficulty scale

The scale which represents the amount of difficulty the participant currently has in speaking clearly enough to use the telephone, as part of Neuro-QOL Communication

Supplemental Neuro-QOL Adult Bank - Communication General (For all diseases) General (For all diseases)
C12717 Electrophysiology repetitive nerve stimulation study stimulus intensity value

Value, in mV, of stimulation intensity in the repetitive nerve study being recorded

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C00707 Alcohol consume six or more drinks frequency

The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C02210 Enrolled in study indicator

Indicator of whether the participant/subject was enrolled into the clinical research study

Supplemental Informed Consent and Enrollment General (For all diseases) General (For all diseases)
C21300 Quality of Life - Stigma illness blame recent assessment scale

The scale representing how often some people acted as though it was the participant's own fault they have this illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21192 Quality of Life - Normal routine disturbance nervousness past week scale

The scale representing how often the participant felt nervous when their normal routine was disturbed in the past 7 days, as part of Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C18696 Imaging dimension other text

The free-text field related to 'Imaging dimension type' specifying other text. Type of imaging dimension used

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C20771 Patient-Reported Outcome Measurement Information System (PROMIS) - Errand performance ability satisfaction past week scale

The scale which represents how often the participant's satisfaction with his/her ability to run errands in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21167 Quality of Life - Hobby leisure activity limit complete past week scale

The scale representing how often the participant had to limit their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C20406 Serious adverse events comment text

Provide any additional information that pertains to the adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
Displaying 451 - 475 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.