CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 426 - 450 of 740
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12744 Electrophysiology neuromuscular jitter mean consecutive difference abnormal count

Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21135 Quality of Life - Movement spoon eat meal difficulty scale

The scale which represents the amount of difficulty the participant currently has in using a spoon to eat a meal, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C20852 Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale

The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Sleep Disturbance General (For all diseases) General (For all diseases)
C20775 Quality of Life - Sudden panic assessment past week scale

The scale which represents how often the participant had sudden feelings of panic in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C10927 Imaging inversion time duration

Duration of the time period between the 180 degree inversion pulse and the 90 degree excitation pulse in an Inversion Recovery pulse sequence

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C20749 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship participation happiness past week scale

The scale which represents how often the participant was happy with how much he/she did for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21154 Quality of Life - Work responsibility maintain ability past week scale

The scale representing how often the participant could keep up with their work responsibilities (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C02005 Study drug returned date and time

Date (and time, if applicable and known) on which the study drug was returned

Supplemental Study Drug Compliance General (For all diseases) General (For all diseases)
C18657 Imaging diffusion sixth b value

Value, in square millimeters per second, of the sixth b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C59019 Birth weight measurement

Measurement in kilograms of the weight of a neonate at birth

Supplemental Medical History General (For all diseases) General (For all diseases)
C21295 Quality of Life - Stigma illness avoid visual contact recent assessment scale

The scale representing how often people avoided looking at the participant because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C20790 Quality of Life - Sleep difficultly assessment past week scale

The scale which represents how often the participant had difficulty sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C12541 Imaging contrast agent injection time

Time contrast medium was administered

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C20757 Patient-Reported Outcome Measurement Information System (PROMIS) - Work time spent satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21162 Quality of Life - Friend visit limit ability past week scale

The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C02012 Study drug dose frequency

Frequency of use of study drug

Supplemental Study Drug Dosing General (For all diseases) General (For all diseases)
C18718 Imaging scanner strength value type other text

The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

Supplemental Demographics General (For all diseases) General (For all diseases)
C21195 Quality of Life - No reason fear assessment past week scale

The scale which represents how often the participant suddenly felt scared for no reason in the past 7 days, as part of Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C18714 Imaging radio frequency coil channel count other text

The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C21266 Quality of Life - Family socialize ability disappointment past week scale

The scale which represents the extent to which the participant was disappointed in their ability to socialize with their family in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21170 Quality of Life - Leisure activity satisfactory complete past week scale

The scale representing how often the participant was able to do all of the leisure activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C20409 Adverse event attribution indicator

Indicator of whether the adverse event was cause by the treatment in question

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C01706 Lab test result text

Result of the laboratory test

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
Displaying 426 - 450 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.