CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 740
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C04500 ECG atrial arrhythmia type

Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C20404 Investigator assessment concurrent disorder specify text

The free-text field to specify the concurrent disorder that might have caused the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21242 Quality of Life - Satisfaction hopeful recent assessment scale

The scale representing how often the participant felt hopeful lately, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C20552 Quality of Life in Neurological Disorders (Neuro-Qol) - Tiredness fatigue asssessment past week scale

The scale representing how often the participant felt tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C20694 Quality of Life - Nothing happy assessment past week scale

The scale which represents how often the participant felt that nothing could cheer him up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C00714 Behavioral history assessment date and time

Date (and time, if applicable and known) the participant/subject behavioral history was taken

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C21303 Quality of Life - Stigma illness social situation embarassment recent assessment scale

The scale representing how often the participant felt embarassed in social situations because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21124 Subject email address name

The name of the email address of the subject/participant

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C10594 Imaging parallel acquisition used indicator

Indicator of whether a parallel acquisition method is used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C12730 Needle electromyography motor unit action potential amplitude measurement

The amplitude value of the motor unit action potential (MUAP) measure during needle electromyography

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C04508 ECG previous myocardial infarction status

Status of patterns of previous myocardial infarction apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C10778 Electrophysiology motor unit number estimation muscle studied name

Name of the muscle studied using the MUNE (motor unit number estimation) technique

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C20572 Quality of Life in Neurological Disorders (Neuro-Qol) - Rest during day fatigue assessment past week scale

The scale representing how often the participant was so tired that they needed rest during the day in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C20731 Quality of Life - Life no reason assessment past week scale

The scale which represents how often the participant felt he/she had no reason for living in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History General (For all diseases) General (For all diseases)
C21311 Quality of Life - Stigma illness speech embarassment recent assessment scale

The scale representing how often the participant felt embarassed about their speech lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C21203 Quality of Life - Plan activity ahead time difficulty scale

The scale which represents the amount of difficulty the participant currently has in planning an activity several days in advance (e.g., a meal, trip, or visit to friends), as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C21114 Visit post baseline day count

The number of days since baseline visit

Supplemental Visit Schedule General (For all diseases) General (For all diseases)
C12738 Needle electromyography interference pattern analysis result

The result of the interference pattern analysis measure during needle electromyography

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C18776 ECG atrial arrhythmia type other text

The free-text field related to 'ECG atrial arrhythmia type', specifying other text. Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C12697 Electrophysiology motor nerve latency value

The length of time needed for the electrical impulse to travel between the stimulation and recording sites measured during the motor nerve conduction study

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs General (For all diseases) General (For all diseases)
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21233 Quality of Life - Feel unloved past week scale

The scale representing how often the participant felt unloved in the past 7 days, as part of Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C21129 Quality of Life - Movement touch-tone phone call ability scale

The scale which represents the extent to which the participant was able to make a phone call using a touch tone key-pad, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
Displaying 301 - 325 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.