CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 740
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21298 Quality of Life - Stigma illness physical limit embarassment recent assessment scale

The scale representing how often the participant felt embarassed because of their physical limitations lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C20793 Quality of Life - Tension assessment past week scale

The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C21121 Subject zip postal code number

The number of the subject/participant's zip/postal code

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
C17925 Imaging contrast agent dose

Dosage of the contrast agent used

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C20767 Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21165 Quality of Life - Home fun limit activity past week scale

The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C21244 Quality of Life - Satisfaction life purpose recent assessment scale

The scale representing how often the participant felt their life had purpose lately, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C12767 Electrophysiology short post-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the short exercise test

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C20557 Quality of Life in Neurological Disorders (Neuro-Qol) - Usual activity assistance need fatigue assessment past week scale

The scale representing how often the participant needed help doing usual activities because of fatigue in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C20697 Quality of Life - Hope loss assessment past week scale

The scale which represents how often the participant wanted to give up on everything in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C12724 Electrophysiology repetitive nerve postactivation elapsed time duration

Interval, in minutes, elapsed after nerve stimulation, at which time postactivation data are being recorded for the repetitive nerve study being recorded

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21305 Quality of Life - Stigma illness other people attitude worry recent assessment scale

The scale representing how often the participant worried about other people's attitudes towards him/her lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C04502 ECG global result type

Type of result in qualitative terms of the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C20575 Quality of Life in Neurological Disorders (Neuro-Qol) - Usual activity help requirement fatigue assessment past week scale

The scale representing how often the participant needed help during usual activities because of weakness in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C20735 Quality of Life - Nothing interest assessment past week scale

The scale which represents how often the participant felt that nothing was interesting in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Supplemental Medical History General (For all diseases) General (For all diseases)
C12732 Needle electromyography motor unit action potential duration

The duration of the motor unit action potential during needle electromyography

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21313 Quality of Life - Stigma illness blame self problem recent assessment scale

The scale representing how often the participant tended to blame himself/herself for their problems lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C04510 ECG QRS duration

Duration in milliseconds (msec) of the QRS complex for the electrocardiogram (ECG/EKG) being recorded

Supplemental Electrocardiogram (ECG) General (For all diseases) General (For all diseases)
C21205 Quality of Life - Remember object location difficulty scale

The scale which represents the amount of difficulty the participant currently has in remembering where things were placed or put away (e.g., keys), as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
Displaying 276 - 300 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.