CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 869
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10786 Electrophysiology motor unit number estimation nerve type

Type of nerve where an electrical signal is measured with the MUNE (motor unit number estimation) technique

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C01522 Height measurement

Measurement of participant's height

 Supplemental Vital Signs False General (For all diseases) General (For all diseases)
C20743 Patient-Reported Outcome Measurement Information System (PROMIS) - Important community activity ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the community activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.0 - Social Activity True General (For all diseases) General (For all diseases)
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

 Supplemental Serious Adverse Events False General (For all diseases) General (For all diseases)
C21238 Quality of Life - Movement outdoor slippery surface walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in walking on a slippery surface, outdoors, as part of Neuro-QOL Lower Extremity Function

 Supplemental Neuro-QOL Adult Bank - Lower Extremity Function True General (For all diseases) General (For all diseases)
C12743 Electrophysiology neuromuscular jitter mean consecutive difference average value

Value, in microseconds, for the average of mean consecutive differences (MCD) recorded for the neuromuscular jitter study being described

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C21134 Quality of Life - Movement shampoo hair ability scale

The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity

 Supplemental Neuro-QOL Adult Bank - Upper Extremity True General (For all diseases) General (For all diseases)
C02301 Adverse event end date and time

Date (and time, if applicable and known) on which the adverse event discontinued/stopped

 Supplemental Adverse Events False General (For all diseases) General (For all diseases)
C05123 Study therapy session expected duration

Duration expected of the study therapy session in minutes according to study protocol

 Supplemental Study Therapies Compliance False General (For all diseases) General (For all diseases)
C21216 Quality of Life - Familiar person name remember difficulty past week scale

The scale representing how often the participant had trouble remembering the name of a familiar person in the past 7 days, as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C12702 Electrophysiology sensory nerve impulse direction type

The impulse direction put on the nerve during the sensory nerve conduction study

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C56495 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference work around home scale

Scale which represents how often the participant felt pain interfered with work around the home over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C20822 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale

The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental Neuro-QOL Adult Bank - Sleep Disturbance True General (For all diseases) General (For all diseases)
C20768 Quality of Life - Anxiety assistance assessment past week scale

The scale which represents how often the participant felt like help was needed for his anxiety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C56455 PROMIS - Pain Behavior when pain move stiffly scale

Scale related to the individual feeling as if when in pain he/she moved stiffly in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
C02024 Medication prior or concomitant indication text

Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject

 Supplemental Prior and Concomitant Medications False General (For all diseases) General (For all diseases)
C10837 Imaging gap between slices measurement

Measurement of the gap between slices used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C20747 Patient-Reported Outcome Measurement Information System (PROMIS) - Outside home fun ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun outside of the home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21153 Quality of Life - Daily routine perform past week scale

The scale representing how often the participant was able to perform their daily routines in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

 Supplemental Medical History False General (For all diseases) General (For all diseases)
C18656 Imaging diffusion fifth b value

Value, in square millimeters per second, of the fifth b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False General (For all diseases) General (For all diseases)
C56503 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference tasks away from home scale

Scale which represents how much pain interfered with participant doing tasks away from home (e.g., getting groceries, running errands) over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C21294 Quality of Life - Stigma illness left out event recent assessment scale

The scale representing how often the participant felt left out of things because of their illness lately, as part of Neuro-QOL Stigma

 Supplemental Neuro-QOL Adult Bank - Stigma True General (For all diseases) General (For all diseases)
C20789 Quality of Life - Worry many situation assessment past week scale

The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C56463 PROMIS - Pain Behavior when pain frown scale

Scale related to the individual feeling as if when he/she was in pain he/she frowned in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
Displaying 276 - 300 of 869

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.