CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 26 - 50 of 1696

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C56338	PROMIS - Smoking negative psychosocial expectancies people think less if smoke scale	Scale related to an individual believing people think less of him/her if they see him/her smoking, as part of the PROMIS Smoking Negative Psychosocial Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for Nondaily Smokers	False	General (For all diseases)	General (For all diseases)
C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered.	Supplemental	Prior and Concomitant Medications	False	General (For all diseases)	General (For all diseases)
C55414	PROMIS - Anxiety anxious scale	Scale related to an individual feeling anxious, as part of the PROMIS Anxiety	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	General (For all diseases)	General (For all diseases)
C55986	PROMIS - Smoking negative health expectancies smoke years off life scale	Scale related to an individual believing smoking is taking years of his/her life, as part of the PROMIS Smoking Negative Health Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for All Smokers	False	General (For all diseases)	General (For all diseases)
C20759	Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale	The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).	Supplemental	PROMIS Item Bank v1.0 - Social Activity	True	General (For all diseases)	General (For all diseases)
C55669	PROMIS - Dyspnea Functional limitations wash dishes scale	Scale related to an individual being able to wash dishes, as part of the PROMIS Dyspnea Functional Limitations	Supplemental	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	General (For all diseases)	General (For all diseases)
C02216	Exclusion criterion not met number	Exclusion criterion number(s) the participant/subject did not meet	Supplemental	Inclusion and Exclusion Criteria	False	General (For all diseases)	General (For all diseases)
C18871	Needle electromyography spontaneous activity other text	The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
C20544	Quality of Life in Neurological Disorders (Neuro-Qol) - Exhaustion fatigue assessment past week scale	The scale representing how often the participant felt exhausted in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
C55339	PROMIS - Negative expectancies drink harmful to mental health scale	Scale related to people perceiving drinking being harmful to mental health, as part of the PROMIS Negative Expectancies	Supplemental	PROMIS Item Bank v1.0 - Alcohol: Negative Expectancies	False	General (For all diseases)	General (For all diseases)
C21229	Quality of Life - Verbal communication organization difficulty scale	The scale which represents the amount of difficulty the participant currently has in organizing what they want to say, as part of Neuro-QOL Communication.	Supplemental	Neuro-QOL Adult Bank - Communication	True	General (For all diseases)	General (For all diseases)
C20789	Quality of Life - Worry many situation assessment past week scale	The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	General (For all diseases)	General (For all diseases)
C12537	Imaging fat signal suppressor used method type	Type of method used to suppress fat signal in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
C12733	Needle electromyography motor unit action potential complexity percent value	The complexity of the motor unit action potential measured during needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
C21297	Quality of Life - Stigma illness uncomfortable other people recent assessment scale	The scale representing how often some people seemed uncomfortable with the participant because of their illness lately, as part of Neuro-QOL Stigma.	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
C20792	Quality of Life - Uneasiness assessment past week scale	The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.	Supplemental	Neuro-QOL Adult Bank - Anxiety	True	General (For all diseases)	General (For all diseases)
C18708	Imaging pulse sequence other text	The free-text field related to 'Imaging pulse sequence type' specifying other text. Type of imaging pulse sequence used	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
C20410	Serious adverse event not resolution indicator	Indicates whether the adverse event was not resolved.	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
C56452	PROMIS - Pain Behavior when pain show on face scale	Scale related to the individual feeling as if when he/she was in pain it showed on his/her face (squinting eyes, opening eyes wide, frowning) in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
C56016	PROMIS - Smoking negative health expectancies smoke leave stain finger scale	Scale related to an individual believing smoking leaves a stain on his/her fingers, as part of the PROMIS Smoking Negative Health Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Nondaily Smokers	False	General (For all diseases)	General (For all diseases)
C56583	PROMIS - Pain Behavior move slower scale	Scale related to an individual moving slower in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
C55723	PROMIS - Self Efficacy managing emotions manage loss of ability scale	Scale related to an individual being able to manage the loss of my ability to do things that are important to me (for example: parenting, work, hobbies, attend school), as part of the PROMIS Self-Efficacy Managing Emotions	Supplemental	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	General (For all diseases)	General (For all diseases)
C56377	PROMIS - Smoking social motivation smoke feel more relax with others scale	Scale related to an individual feeling as if smoking makes him/her feel more relaxed when he/she is with other people, as part of the PROMIS Smoking Social Motivation	Supplemental	PROMIS Item Bank v1.0 - Smoking: Social Motivations for All Smokers	False	General (For all diseases)	General (For all diseases)
C02004	Study drug dispensed date and time	Date (and time, if applicable and known) on which a participant/subject was given or applied a therapeutic agent (drug, intervention therapy) used in a clinical trial protocol	Supplemental	Study Drug Compliance	False	General (For all diseases)	General (For all diseases)
C55423	PROMIS - Anxiety trouble paying attention scale	Scale related to an individual having trouble paying attention, as part of the PROMIS Anxiety	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.