CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 869
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental Demographics General (For all diseases) General (For all diseases)
C56479 PROMIS - Pain Behavior when pain move limb protective scale

Scale related to the individual feeling as if when in pain he/she moved his/her limbs protectively in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Item Bank v1.1 - Pain Behavior General (For all diseases) General (For all diseases)
C21273 Quality of Life - Friendship action ability disappointment past week scale

The scale which represents the extent to which the participant was disappointed in their ability to do things for their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21177 Quality of Life - Outside home entertainment limit ability past week scale

The scale representing how often the participant had to limit the things they do for fun outside their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C54695 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale

Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health General (For all diseases) General (For all diseases)
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C21254 Quality of Life - Satisfaction future event interest recent assessment scale

The scale representing how often the participant looked forward with enjoyment to upcoming events lately, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C10685 Imaging slice orientation type

Type of slice orientation used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C56487 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere with enjoy recreational activity scale

Scale related to how much pain interfered with an individual's enjoyment of recreational activities in the past 7 days, as part of the PROMIS Pain Interference

Supplemental PROMIS Item Bank v1.1 - Pain Interference General (For all diseases) General (For all diseases)
C21281 Quality of Life - Work home ability disappointment past week scale

The scale which represents the extent to which the participant was disappointed by their ability to work (include work at home) in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C21185 Quality of Life - All work satisfactory complete past week scale

The scale representing how often the participant was able to do all of the work that people expected of them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C56447 PROMIS - Pain Behavior when pain clench teeth scale

Scale related to the individual feeling as if when he/she was in pain he/she clenched his/her teeth in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Item Bank v1.1 - Pain Behavior General (For all diseases) General (For all diseases)
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C21262 Quality of Life - Satisfaction good thought control recent assessment scale

The scale representing how often the participant had good control of their thoughts lately, as part of Neuro-QOL Positive Affect and Well-Being

Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being General (For all diseases) General (For all diseases)
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core General (For all diseases) General (For all diseases)
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C17794 Imaging diffusion second b value

Value, in square millimeters per second, of the second b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Supplemental Medical History General (For all diseases) General (For all diseases)
C56495 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference work around home scale

Scale which represents how often the participant felt pain interfered with work around the home over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.1 - Pain Interference General (For all diseases) General (For all diseases)
C20822 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale

The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Sleep Disturbance General (For all diseases) General (For all diseases)
C20768 Quality of Life - Anxiety assistance assessment past week scale

The scale which represents how often the participant felt like help was needed for his anxiety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C56455 PROMIS - Pain Behavior when pain move stiffly scale

Scale related to the individual feeling as if when in pain he/she moved stiffly in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Item Bank v1.1 - Pain Behavior General (For all diseases) General (For all diseases)
C10837 Imaging gap between slices measurement

Measurement of the gap between slices used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
Displaying 26 - 50 of 869

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.