CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 26 - 50 of 1696
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C56338 PROMIS - Smoking negative psychosocial expectancies people think less if smoke scale

Scale related to an individual believing people think less of him/her if they see him/her smoking, as part of the PROMIS Smoking Negative Psychosocial Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for Nondaily Smokers General (For all diseases) General (For all diseases)
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered.

Supplemental Prior and Concomitant Medications General (For all diseases) General (For all diseases)
C55414 PROMIS - Anxiety anxious scale

Scale related to an individual feeling anxious, as part of the PROMIS Anxiety

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety General (For all diseases) General (For all diseases)
C55986 PROMIS - Smoking negative health expectancies smoke years off life scale

Scale related to an individual believing smoking is taking years of his/her life, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for All Smokers General (For all diseases) General (For all diseases)
C20759 Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale

The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C55669 PROMIS - Dyspnea Functional limitations wash dishes scale

Scale related to an individual being able to wash dishes, as part of the PROMIS Dyspnea Functional Limitations

Supplemental PROMIS Item Bank v1.0 - Dyspnea Functional Limitations General (For all diseases) General (For all diseases)
C02216 Exclusion criterion not met number

Exclusion criterion number(s) the participant/subject did not meet

Supplemental Inclusion and Exclusion Criteria General (For all diseases) General (For all diseases)
C18871 Needle electromyography spontaneous activity other text

The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C20544 Quality of Life in Neurological Disorders (Neuro-Qol) - Exhaustion fatigue assessment past week scale

The scale representing how often the participant felt exhausted in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C55339 PROMIS - Negative expectancies drink harmful to mental health scale

Scale related to people perceiving drinking being harmful to mental health, as part of the PROMIS Negative Expectancies

Supplemental PROMIS Item Bank v1.0 - Alcohol: Negative Expectancies General (For all diseases) General (For all diseases)
C21229 Quality of Life - Verbal communication organization difficulty scale

The scale which represents the amount of difficulty the participant currently has in organizing what they want to say, as part of Neuro-QOL Communication.

Supplemental Neuro-QOL Adult Bank - Communication General (For all diseases) General (For all diseases)
C20789 Quality of Life - Worry many situation assessment past week scale

The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety General (For all diseases) General (For all diseases)
C12537 Imaging fat signal suppressor used method type

Type of method used to suppress fat signal in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C12733 Needle electromyography motor unit action potential complexity percent value

The complexity of the motor unit action potential measured during needle electromyography

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21297 Quality of Life - Stigma illness uncomfortable other people recent assessment scale

The scale representing how often some people seemed uncomfortable with the participant because of their illness lately, as part of Neuro-QOL Stigma.

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
C20792 Quality of Life - Uneasiness assessment past week scale

The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C18708 Imaging pulse sequence other text

The free-text field related to 'Imaging pulse sequence type' specifying other text. Type of imaging pulse sequence used

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C20410 Serious adverse event not resolution indicator

Indicates whether the adverse event was not resolved.

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C56452 PROMIS - Pain Behavior when pain show on face scale

Scale related to the individual feeling as if when he/she was in pain it showed on his/her face (squinting eyes, opening eyes wide, frowning) in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Item Bank v1.1 - Pain Behavior General (For all diseases) General (For all diseases)
C56016 PROMIS - Smoking negative health expectancies smoke leave stain finger scale

Scale related to an individual believing smoking leaves a stain on his/her fingers, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Nondaily Smokers General (For all diseases) General (For all diseases)
C56583 PROMIS - Pain Behavior move slower scale

Scale related to an individual moving slower in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a General (For all diseases) General (For all diseases)
C55723 PROMIS - Self Efficacy managing emotions manage loss of ability scale

Scale related to an individual being able to manage the loss of my ability to do things that are important to me (for example: parenting, work, hobbies, attend school), as part of the PROMIS Self-Efficacy Managing Emotions

Supplemental PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions General (For all diseases) General (For all diseases)
C56377 PROMIS - Smoking social motivation smoke feel more relax with others scale

Scale related to an individual feeling as if smoking makes him/her feel more relaxed when he/she is with other people, as part of the PROMIS Smoking Social Motivation

Supplemental PROMIS Item Bank v1.0 - Smoking: Social Motivations for All Smokers General (For all diseases) General (For all diseases)
C02004 Study drug dispensed date and time

Date (and time, if applicable and known) on which a participant/subject was given or applied a therapeutic agent (drug, intervention therapy) used in a clinical trial protocol

Supplemental Study Drug Compliance General (For all diseases) General (For all diseases)
C55423 PROMIS - Anxiety trouble paying attention scale

Scale related to an individual having trouble paying attention, as part of the PROMIS Anxiety

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety General (For all diseases) General (For all diseases)
Displaying 26 - 50 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.