CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	General (For all diseases)	General (For all diseases)
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth.	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	General (For all diseases)	General (For all diseases)
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	General (For all diseases)	General (For all diseases)
C00035	Gender type	Self-reported gender of the participant/subject.	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Screening Log	False	General (For all diseases)	General (For all diseases)
C21147	Quality of Life - Family responsibility maintain past week scale	The scale representing how often the participant could keep up with their family responsibilities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
C02023	Study drug dose unit of measure	Unit of measure of the study drug dosage administered	Supplemental	Study Drug Dosing	False	General (For all diseases)	General (For all diseases)
C02495	Imaging scanner strength value	Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Supplemental	Demographics	False	General (For all diseases)	General (For all diseases)
C56520	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain keep stand position scale	Scale related to how often pain kept individual from getting into a standing position in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.1 - Pain Interference	False	General (For all diseases)	General (For all diseases)
C56136	PROMIS - Smoking nicotine dependence hard to go without smoke day scale	Scale related to an individual feeling as if it is hard for him/her to go without smoking for a whole day, as part of the Smoking Nicotine Dependence	Supplemental	PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Nondaily Smokers	False	General (For all diseases)	General (For all diseases)
C55771	PROMIS - Smoking coping expectancies smoke keep from overeat scale	Scale related to an individual believing smoking keeps him/her from overeating, as part of the PROMIS Smoking Coping Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Nondaily Smokers	False	General (For all diseases)	General (For all diseases)
C56480	PROMIS - Pain Behavior when pain avoid physical contact scale	Scale related to the individual feeling as if when in pain he/she avoided physical contact with others in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Item Bank v1.1 - Pain Behavior	False	General (For all diseases)	General (For all diseases)
C20780	Quality of Life - Fear terrible future occurrence past week scale	The scale which represents how often the participant felt something awful would happen in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	General (For all diseases)	General (For all diseases)
C55582	PROMIS - Applied Cognition general concerns forgot name soon after introduction scale	Scale related to an individual having forgotten names of people soon after being introduced, as part of the PROMIS Applied Cognition General Concerns	Supplemental	PROMIS Item Bank v1.0 - Applied Cognition - General Concerns	False	General (For all diseases)	General (For all diseases)
C56066	PROMIS - Smoking nicotine dependence real gnaw hunger for cigarette scale	Scale related to an individual getting a real gnawing hunger for a cigarette when he/she hasn't smoked in a while, as part of the PROMIS Smoking Nicotine Dependence	Supplemental	PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.