CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1696
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core General Core General (For all diseases) General (For all diseases)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core General (For all diseases) General (For all diseases)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core Demographics General (For all diseases) General (For all diseases)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core General (For all diseases) General (For all diseases)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History General (For all diseases) General (For all diseases)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core General (For all diseases) General (For all diseases)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core General (For all diseases) General (For all diseases)
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

Core General Core General (For all diseases) General (For all diseases)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History General (For all diseases) General (For all diseases)
C00035 Gender type

Self-reported gender of the participant/subject.

Core Demographics General (For all diseases) General (For all diseases)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics General (For all diseases) General (For all diseases)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics General (For all diseases) General (For all diseases)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core General (For all diseases) General (For all diseases)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Screening Log General (For all diseases) General (For all diseases)
C21147 Quality of Life - Family responsibility maintain past week scale

The scale representing how often the participant could keep up with their family responsibilities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA.

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C02023 Study drug dose unit of measure

Unit of measure of the study drug dosage administered

Supplemental Study Drug Dosing General (For all diseases) General (For all diseases)
C02495 Imaging scanner strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Magnetic Resonance Imaging (MRI) General (For all diseases) General (For all diseases)
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

Supplemental Demographics General (For all diseases) General (For all diseases)
C56520 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain keep stand position scale

Scale related to how often pain kept individual from getting into a standing position in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.1 - Pain Interference General (For all diseases) General (For all diseases)
C56136 PROMIS - Smoking nicotine dependence hard to go without smoke day scale

Scale related to an individual feeling as if it is hard for him/her to go without smoking for a whole day, as part of the Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Nondaily Smokers General (For all diseases) General (For all diseases)
C55771 PROMIS - Smoking coping expectancies smoke keep from overeat scale

Scale related to an individual believing smoking keeps him/her from overeating, as part of the PROMIS Smoking Coping Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Coping Expectancies for Nondaily Smokers General (For all diseases) General (For all diseases)
C56480 PROMIS - Pain Behavior when pain avoid physical contact scale

Scale related to the individual feeling as if when in pain he/she avoided physical contact with others in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Item Bank v1.1 - Pain Behavior General (For all diseases) General (For all diseases)
C20780 Quality of Life - Fear terrible future occurrence past week scale

The scale which represents how often the participant felt something awful would happen in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety General (For all diseases) General (For all diseases)
C55582 PROMIS - Applied Cognition general concerns forgot name soon after introduction scale

Scale related to an individual having forgotten names of people soon after being introduced, as part of the PROMIS Applied Cognition General Concerns

Supplemental PROMIS Item Bank v1.0 - Applied Cognition - General Concerns General (For all diseases) General (For all diseases)
C56066 PROMIS - Smoking nicotine dependence real gnaw hunger for cigarette scale

Scale related to an individual getting a real gnawing hunger for a cigarette when he/she hasn't smoked in a while, as part of the PROMIS Smoking Nicotine Dependence

Supplemental PROMIS Item Bank v1.0 - Smoking: Nicotine Dependence for Daily Smokers General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.