C00007
Birth date
Date (and time, if applicable and known) the participant/subject was born
Core
Demographics
False
General (For all diseases)
General (For all diseases)
C00020
Ethnicity USA category
Category of ethnicity the participant/subject most closely identifies with
Core
Demographics
False
General (For all diseases)
General (For all diseases)
C00020
Ethnicity USA category
Category of ethnicity the participant/subject most closely identifies with
Core
General Core
False
General (For all diseases)
General (For all diseases)
C00007
Birth date
Date (and time, if applicable and known) the participant/subject was born
Core
Screening Log
False
General (For all diseases)
General (For all diseases)
C00030
Race USA category
The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories
Core
General Core
False
General (For all diseases)
General (For all diseases)
C00322
Medical history condition text
Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history
Core
Medical History
False
General (For all diseases)
General (For all diseases)
C00313
Medical history condition SNOMED CT code
Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject
Core
General Core
False
General (For all diseases)
General (For all diseases)
C00030
Race USA category
The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories
Core
Demographics
False
General (For all diseases)
General (For all diseases)
C00322
Medical history condition text
Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history
Core
General Core
False
General (For all diseases)
General (For all diseases)
C00313
Medical history condition SNOMED CT code
Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject
Core
Medical History
False
General (For all diseases)
General (For all diseases)
C58676
Birth sex assigned type
Self-reported phenotypic sex of participant/subject, assigned at birth
Core
General Core
False
General (For all diseases)
General (For all diseases)
C00007
Birth date
Date (and time, if applicable and known) the participant/subject was born
Core
General Core
False
General (For all diseases)
General (For all diseases)
C58677
Gender identity type
Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth
Core
General Core
False
General (For all diseases)
General (For all diseases)
C00035
Gender type
Self-reported gender of the participant/subject
Core
Demographics
False
General (For all diseases)
General (For all diseases)
C21273
Quality of Life - Friendship action ability disappointment past week scale
The scale which represents the extent to which the participant was disappointed in their ability to do things for their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
C55172
PROMIS - Alcohol use drink more than plan scale
Scale related to an individual drinking more than planned, as part of the PROMIS Alcohol Use
Supplemental
PROMIS Item Bank v1.0 - Alcohol Use
False
General (For all diseases)
General (For all diseases)
C21177
Quality of Life - Outside home entertainment limit ability past week scale
The scale representing how often the participant had to limit the things they do for fun outside their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
C20696
Quality of Life - Sadness assessment past week scale
The scale which represents how often the participant felt sad in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression
Supplemental
PROMIS Item Bank v1.0 - Emotional Distress - Depression
True
General (For all diseases)
General (For all diseases)
C10927
Imaging inversion time
The time period between the 180° inversion pulse and the 90° excitation pulse in an Inversion Recovery pulse sequence
Supplemental
Magnetic Resonance Imaging (MRI)
False
General (For all diseases)
General (For all diseases)
C21254
Quality of Life - Satisfaction future event interest recent assessment scale
The scale representing how often the participant looked forward with enjoyment to upcoming events lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
C19558
Biomarker leukocytes assessment type
Type of biomarker(s) assessed from leukocytes samples
Supplemental
Biomarkers in Mitochondrial Disease
False
General (For all diseases)
General (For all diseases)
C02005
Study drug returned date and time
Date (and time, if applicable and known) on which the study drug was returned
Supplemental
Study Drug Compliance
False
General (For all diseases)
General (For all diseases)
C18657
Imaging diffusion sixth b value
Value, in square millimeters per second, of the sixth b-value used in diffusion acquisition
Supplemental
Diffusion Tensor Imaging (DTI)
False
General (For all diseases)
General (For all diseases)
C55861
PROMIS - Smoking emotional and sensory expectancies enjoy sensation of long slow exhale scale
Scale related to an individual enjoying the sensations of a long, slow exhalation of smoke, as part of the Smoking Emotional and Sensory Expectancies
Supplemental
PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Nondaily Smokers
False
General (For all diseases)
General (For all diseases)
C00316
Medical history condition end date and time
Date (and time, if applicable and known) for the end of an event in the participant's/subject's medical history
Supplemental
Medical History
False
General (For all diseases)
General (For all diseases)