CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Screening Log	False	General (For all diseases)	General (For all diseases)
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	General (For all diseases)	General (For all diseases)
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	General (For all diseases)	General (For all diseases)
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	General (For all diseases)	General (For all diseases)
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	General (For all diseases)	General (For all diseases)
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	General (For all diseases)	General (For all diseases)
C20807	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep deepness assessment past week scale	The scale which represents how often the participant's sleep was deep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	General (For all diseases)	General (For all diseases)
C55391	PROMIS - Positive consequences confident when drink scale	Scale related to if the individual felt confident when he/she drank, as part of the PROMIS Positive Consequences	Supplemental	PROMIS Item Bank v1.0 - Alcohol - Positive Consequences	False	General (For all diseases)	General (For all diseases)
C21232	Quality of Life - Mistake self critical past week scale	The scale representing how often the participant was critical of himself/herself for their mistakes in the past 7 days, as part of Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
C20852	Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale	The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	General (For all diseases)	General (For all diseases)
C12757	Electrophysiology blood pressure response Valsalva phase II late result	The blood pressure response to valsalva maneuver during Phase II late	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
C21128	Quality of Life - Movement brush teeth ability scale	The scale which represents the extent to which the participant was able to brush their teeth, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
C21210	Quality of Life - Several repeat read past week scale	The scale representing how often the participant had to read something serveral times to understand it in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
C12714	Electrophysiology blink reflex test contralateral R2 latency value	Duration of contralateral R2 latency in the blink reflex test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
C18659	Unexpected adverse event indicator	The indicator of whether the adverse event is unexpected	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.