CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1696
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core General (For all diseases) General (For all diseases)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History General (For all diseases) General (For all diseases)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core General (For all diseases) General (For all diseases)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics General (For all diseases) General (For all diseases)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core General (For all diseases) General (For all diseases)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History General (For all diseases) General (For all diseases)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core General (For all diseases) General (For all diseases)
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core General (For all diseases) General (For all diseases)
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics General (For all diseases) General (For all diseases)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics General (For all diseases) General (For all diseases)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core General (For all diseases) General (For all diseases)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics General (For all diseases) General (For all diseases)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Screening Log General (For all diseases) General (For all diseases)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core General (For all diseases) General (For all diseases)
C55995 PROMIS - Smoking negative health expectancies smoke make lung hurt scale

Scale related to an individual believing smoking makes his/her lungs hurt, as part of the PROMIS Smoking Negative Health Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Health Expectancies for Nondaily Smokers General (For all diseases) General (For all diseases)
C56576 PROMIS - Meaning and Purpose life filled meaning scale

Scale related to an individual feeling as if his/her life is filled with meaning, as part of the PROMIS Meaning and Purpose

Supplemental PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose-Short Form 4a General (For all diseases) General (For all diseases)
C55713 PROMIS - Self Efficacy managing emotions bounce back from disappoint scale

Scale related to an individual being able to bounce back from disappointment, as part of the PROMIS Self-Efficacy Managing Emotions

Supplemental PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions General (For all diseases) General (For all diseases)
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C56331 PROMIS - Smoking negative psychosocial expectancies need for cigarette make feel disappoint scale

Scale related to an individual's need for cigarettes making him/her feel disappointed in him/herself, as part of the PROMIS Smoking Negative Psychosocial Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Negative Psychosocial Expectancies for Nondaily Smokers General (For all diseases) General (For all diseases)
C55412 PROMIS - Anxiety frightened scale

Scale related to an individual feeling frightened, as part of the PROMIS Anxiety

Supplemental PROMIS Item Bank v1.0 - Emotional Distress - Anxiety General (For all diseases) General (For all diseases)
C55861 PROMIS - Smoking emotional and sensory expectancies enjoy sensation of long slow exhale scale

Scale related to an individual enjoying the sensations of a long, slow exhalation of smoke, as part of the Smoking Emotional and Sensory Expectancies

Supplemental PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for All Smokers General (For all diseases) General (For all diseases)
C21325 Quality of Life - Movement armless straight chair stand up difficulty scale

The scale which represents the amount of difficulty the participant currently has in standing up from an armless straight chair (e.g., dining room chair), as part of Neuro-QOL Lower Extremity Function

Supplemental Neuro-QOL Adult Bank - Lower Extremity Function General (For all diseases) General (For all diseases)
C20757 Patient-Reported Outcome Measurement Information System (PROMIS) - Work time spent satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C55667 PROMIS - Dyspnea Functional limitations walk 20 stairs without stop scale

Scale related to an individual being able to walk up 20 stairs (2 flights) without stopping, as part of the PROMIS Dyspnea Functional Limitations

Supplemental PROMIS Item Bank v1.0 - Dyspnea Functional Limitations General (For all diseases) General (For all diseases)
C14123 Country of residence name

Country where the participant/subject currently lives

Supplemental Participant/Subject Contact Information General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.