CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Screening Log	False	General (For all diseases)	General (For all diseases)
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	General (For all diseases)	General (For all diseases)
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	General (For all diseases)	General (For all diseases)
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	General (For all diseases)	General (For all diseases)
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	General (For all diseases)	General (For all diseases)
C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	General (For all diseases)	General (For all diseases)
C21273	Quality of Life - Friendship action ability disappointment past week scale	The scale which represents the extent to which the participant was disappointed in their ability to do things for their friends in the past 7 days, as part of Neuro-QOL Satisfaction with SRA	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
C55172	PROMIS - Alcohol use drink more than plan scale	Scale related to an individual drinking more than planned, as part of the PROMIS Alcohol Use	Supplemental	PROMIS Item Bank v1.0 - Alcohol Use	False	General (For all diseases)	General (For all diseases)
C21177	Quality of Life - Outside home entertainment limit ability past week scale	The scale representing how often the participant had to limit the things they do for fun outside their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
C20696	Quality of Life - Sadness assessment past week scale	The scale which represents how often the participant felt sad in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	PROMIS Item Bank v1.0 - Emotional Distress - Depression	True	General (For all diseases)	General (For all diseases)
C10927	Imaging inversion time	The time period between the 180° inversion pulse and the 90° excitation pulse in an Inversion Recovery pulse sequence	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
C21254	Quality of Life - Satisfaction future event interest recent assessment scale	The scale representing how often the participant looked forward with enjoyment to upcoming events lately, as part of Neuro-QOL Positive Affect and Well-Being	Supplemental	Neuro-QOL Adult Bank - Positive Affect and Well-Being	True	General (For all diseases)	General (For all diseases)
C19558	Biomarker leukocytes assessment type	Type of biomarker(s) assessed from leukocytes samples	Supplemental	Biomarkers in Mitochondrial Disease	False	General (For all diseases)	General (For all diseases)
C02005	Study drug returned date and time	Date (and time, if applicable and known) on which the study drug was returned	Supplemental	Study Drug Compliance	False	General (For all diseases)	General (For all diseases)
C18657	Imaging diffusion sixth b value	Value, in square millimeters per second, of the sixth b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
C55861	PROMIS - Smoking emotional and sensory expectancies enjoy sensation of long slow exhale scale	Scale related to an individual enjoying the sensations of a long, slow exhalation of smoke, as part of the Smoking Emotional and Sensory Expectancies	Supplemental	PROMIS Item Bank v1.0 - Smoking: Emotional and Sensory Expectancies for Nondaily Smokers	False	General (For all diseases)	General (For all diseases)
C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's/subject's medical history	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.