CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 701 - 725 of 755

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0013-C59687	C59687	COVID-19 first date	Date the participant/subject was first told or first thought that they had coronavirus disease 2019 (COVID-19)	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0005-C14123	C14123	Country of residence name	Country where the participant/subject currently lives	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0006-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0037-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
F0013-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0037-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
F0013-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0026-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0026-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0026-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0013-C59019	C59019	Birth weight measurement	Measurement in kilograms of the weight of a neonate at birth	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0016-C18385	C18385	Birth time	Time the participant was born	Supplemental	Demographics	0	General (For all diseases)	General (For all diseases)
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth	Supplemental	General Core	False	General (For all diseases)	General (For all diseases)
F0016-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth	Supplemental	Demographics	0	General (For all diseases)	General (For all diseases)
F0016-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant, assigned at birth	Core	Demographics	0	General (For all diseases)	General (For all diseases)
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant, assigned at birth	Core	General Core	False	General (For all diseases)	General (For all diseases)
F0016-C18863	C18863	Birth location state other text	The free-text field related to 'Birth location state name', specifying other text. Name of the state/province/similar political division in which participant was born	Supplemental	Demographics	0	General (For all diseases)	General (For all diseases)
F0016-C12611	C12611	Birth location state name	Name of the state/province/similar political division in which participant was born	Supplemental	Demographics	0	General (For all diseases)	General (For all diseases)
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	General Core	False	General (For all diseases)	General (For all diseases)
F0003-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	Screening Log	False	General (For all diseases)	General (For all diseases)
F0016-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	Demographics	0	General (For all diseases)	General (For all diseases)
F0016-C00005	C00005	Birth country name	Name for country where the participant was born	Supplemental	Demographics	0	General (For all diseases)	General (For all diseases)
F0016-C00004	C00004	Birth country ISO code	Code (ISO 3166-1 alpha-2 code) for country where the participant was born	Supplemental	Demographics	0	General (For all diseases)	General (For all diseases)
F0010-C00714	C00714	Behavioral history assessment date and time	Date (and time, if applicable and known) the participant/subject behavioral history was taken	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0021-C60367	C60367	Autopsy indicator	Indicator of whether an autopsy was performed	Supplemental	Death Report	0	General (For all diseases)	General (For all diseases)

Displaying 701 - 725 of 755

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.