CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 426 - 450 of 740
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core General (For all diseases) General (For all diseases)
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

Supplemental Medical History General (For all diseases) General (For all diseases)
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's medical history

Supplemental Medical History General (For all diseases) General (For all diseases)
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Supplemental Social Status General (For all diseases) General (For all diseases)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Electrophysiology General (For all diseases) General (For all diseases)
C21110 Last visit indicator

Indicator for the visit being the last one

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C02200 Last study intervention date and time

Date (and time, if applicable) of the last known study intervention that the participant/subject received

Supplemental Study Discontinuation/Completion General (For all diseases) General (For all diseases)
C12232 Laboratory director name

Name of laboratory director where assessment was performed

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C01706 Lab test result text

Result of the laboratory test

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C01708 Lab test performed indicator

Indicator of whether the lab test has been performed on the participant/subject

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C18729 Lab panel other text

The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking General (For all diseases) General (For all diseases)
C20414 Investigator assessment intervention withdrawal specify text

The free-text field to specify the details of the withdrawal of study intervention that might have caused the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20404 Investigator assessment concurrent disorder specify text

The free-text field to specify the concurrent disorder that might have caused the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C20413 Investigator assessment concomitant medication specify text

The free-text field to specify the concomitant medication that might have caused the serious adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C22702 Institutional review board notification indicator

Indicator of whether the Institutional Review Board (IRB) was notified following an adverse event

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C02209 Informed consent obtained indicator

Indicator of whether informed consent was obtained for the participant/subject to participate in the clinical research study

Supplemental Informed Consent and Enrollment General (For all diseases) General (For all diseases)
Displaying 426 - 450 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.