CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 1 - 25 of 869

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0004-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F0026-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0004-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F0026-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0026-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0008-C21115	C21115	Visit week count	Count of days in a week where a visit was made	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0008-C21113	C21113	Visit screening indicator	Indicator for screening during visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0006-C21108	C21108	Visit present indicator	Indicator for the presence of the subject at the visit	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0008-C21114	C21114	Visit post baseline day count	The number of days since baseline visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0008-C21112	C21112	Visit form name	Name of the form used during the visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0008-C21116	C21116	Visit follow-up indicator	Indicator for a follow-up visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0006-C21109	C21109	Visit assessment complete type	Type of assessment completed during visit	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0004-C18659	C18659	Unexpected adverse event indicator	The indicator of whether the adverse event is unexpected	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F0009-C18659	C18659	Unexpected adverse event indicator	The indicator of whether the adverse event is unexpected	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
F0010-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0010-C00703	C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0010-C00719	C00719	Tobacco product used type	Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0010-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0010-C00711	C00711	Tobacco prior use indicator	Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0010-C00710	C00710	Tobacco current use indicator	Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0010-C00709	C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F1062-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0026-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0026-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0026-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.