CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 1071
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00724 APGAR five minute score

Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental Medical History General (For all diseases) General (For all diseases)
C00723 APGAR ten minute score

Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental Medical History General (For all diseases) General (For all diseases)
C00714 Behavioral history assessment date and time

Date (and time, if applicable and known) the participant/subject behavioral history was taken

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C19559 Biomark neutrophils assessment type

Type of biomark(s) assessed from neutrophils sample

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19548 Biomarker Analysis Indicator

Indicator that a biomarker analysis was performed

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19551 Biomarker blood plasma specimen assessment type

Type of biomarker(s) assessed from blood serum/plasma samples

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19556 Biomarker cerebrospinal fluid assessment type

Type of biomarker assessed from CSF samples

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19557 Biomarker fibroblasts assessment type

Type of biomarker(s) assessed from fibroblasts samples

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19569 Biomarker genetic assessment type

The types of genetic biomarker from the speciment that were evaluated

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19558 Biomarker leukocytes assessment type

Type of biomarker(s) assessed from leukocytes samples

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19563 Biomarker lymphoblast assessment type

Type of biomarker(s) assessed from lymphoblasts samples

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19562 Biomarker lymphocyte assessment type

Type of biomarker(s) assessed from lymphocytes samples

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19560 Biomarker monocyte assessment type

Type of biomark(s) assessed from monocytes samples

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19564 Biomarker muscle biochemistry assessment type

Type of biomarker(s) assessed from muscle biochemistry

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19567 Biomarker muscle histology assessment type

Type of biomarker(s) assessed from muscle histology

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19568 Biomarker myotube assessment type

Type of biomarker(s) assessed nfrom myotubes

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19561 Biomarker platelet assessment type

Type of biomarker(s) assessed from platelets (high OXPHOS) samples

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19549 Biomarker Sample Assessment Type

Type of sample obtained from specimen to assess the biomarker

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C19555 Biomarker Urine Assessment Type

Type of biomarker(s) assessed from urine samples

Supplemental Biomarkers in Mitochondrial Disease General (For all diseases) General (For all diseases)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core General (For all diseases) General (For all diseases)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics General (For all diseases) General (For all diseases)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Screening Log General (For all diseases) General (For all diseases)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core Demographics General (For all diseases) General (For all diseases)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core General (For all diseases) General (For all diseases)
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core General (For all diseases) General (For all diseases)
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.