CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1696
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20409 Adverse event attribution indicator

Indicator of whether the adverse event was cause by the treatment in question.

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C02310 Adverse event CTCAE low level term name

Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event.

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C02310 Adverse event CTCAE low level term name

Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event.

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C02308 Adverse event during study indicator

Indicator of whether the participant/subject experienced any adverse events during the study

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C02301 Adverse event end date and time

Date (and time, if applicable and known) on which the adverse event discontinued/stopped

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C02311 Adverse event MedDRA lower level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C02311 Adverse event MedDRA lower level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C02302 Adverse event other action taken type

Type of action taken due to adverse event other than action taken with study intervention/ treatment

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C02303 Adverse event outcome status

Final status of the participant/subject related to the adverse event

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C02304 Adverse event relatedness scale

Scale of the causality between the treatment modality/intervention and the specific adverse event

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C20407 Adverse event reporting identifier name

A name of an authorized group or person reporting the adverse event.

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C02305 Adverse event severity grade scale

The grading scale of the severity or intensity of the adverse event

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C02306 Adverse event start date and time

Date (and time, if applicable and known) on which the adverse event was first evident

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C02300 Adverse event study intervention action taken type

Type of action taken for adverse event in relation to study intervention

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C02307 Adverse event verbatim term text

Text that describes the adverse event word for word as described by the participant/subject

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C02307 Adverse event verbatim term text

Text that describes the adverse event word for word as described by the participant/subject

Supplemental Adverse Events General (For all diseases) General (For all diseases)
C00008 Age value

Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject.

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C00707 Alcohol consume six or more drinks frequency

The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol.

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C00704 Alcohol drinking day average drinks consumed range

The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol.

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant.

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C00708 Alcohol use related to hospitalization indicator

Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C00702 Alcohol use started age value

Age in years when participant/subject started ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History General (For all diseases) General (For all diseases)
C00700 Alcohol use stopped age value

Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History General (For all diseases) General (For all diseases)
Displaying 1 - 25 of 1696

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.