CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 740
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21247 Quality of Life - Satisfaction life functional recent assessment scale

The scale representing how often the participant felt their life was worth living lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C21246 Quality of Life - Satisfaction cheerful recent assessment scale

The scale representing how often the participant felt cheerful lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C21245 Quality of Life - Satisfaction life significance recent assessment scale

The scale representing how often the participant felt their life had meaning lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C21244 Quality of Life - Satisfaction life purpose recent assessment scale

The scale representing how often the participant felt their life had purpose lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C21243 Quality of Life - Satisfication general life recent assessment scale

The scale representing how often the participant felt their life was satisfying lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C21242 Quality of Life - Satisfaction hopeful recent assessment scale

The scale representing how often the participant felt hopeful lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C21241 Quality of Life - Satisfaction well being recent asssement scale

The scale representing how often the participant had a sense of well-being lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C21240 Quality of Life - Movement dark room no fall walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in walking in a dark room without falling, as part of Neuro-QOL Lower Extremity Function

 Supplemental Neuro-QOL Adult Bank - Lower Extremity Function True General (For all diseases) General (For all diseases)
C21239 Quality of Life - Movement no handrail stair climb difficulty scale

The scale which represents the amount of difficulty the participant currently has in climbing stairs step over step without a handrail (alternating feet), as part of Neuro-QOL Lower Extremity Function

 Supplemental Neuro-QOL Adult Bank - Lower Extremity Function True General (For all diseases) General (For all diseases)
C21238 Quality of Life - Movement outdoor slippery surface walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in walking on a slippery surface, outdoors, as part of Neuro-QOL Lower Extremity Function

 Supplemental Neuro-QOL Adult Bank - Lower Extremity Function True General (For all diseases) General (For all diseases)
C21237 Quality of Life - Movement twenty minute duration brisk walk difficulty scale

The scale which represents the amount of difficulty the participant currently has in taking a 20-minute brisk walk, without stopping to rest, as part of Neuro-QOL Lower Extremity Function

 Supplemental Neuro-QOL Adult Bank - Lower Extremity Function True General (For all diseases) General (For all diseases)
C21236 Quality of Life - Enjoyment trouble past week scale

The scale representing how often the participant had trouble enjoying things that they used to enjoy in the past 7 days, as part of Neuro-QOL Depression Adult Bank

 Supplemental Neuro-QOL Adult Bank - Depression True General (For all diseases) General (For all diseases)
C21235 Quality of Life - Depression help need past week scale

The scale representing how often the participant felt like they needeed help for their depression in the past 7 days, as part of Neuro-QOL Depression Adult Bank

 Supplemental Neuro-QOL Adult Bank - Depression True General (For all diseases) General (For all diseases)
C21234 Quality of Life - Maintain task thought trouble past week scale

The scale representing how often the participant had trouble keeping their mind on what they were doing in the past 7 days, as part of Neuro-QOL Depression

 Supplemental Neuro-QOL Adult Bank - Depression True General (For all diseases) General (For all diseases)
C21233 Quality of Life - Feel unloved past week scale

The scale representing how often the participant felt unloved in the past 7 days, as part of Neuro-QOL Depression

 Supplemental Neuro-QOL Adult Bank - Depression True General (For all diseases) General (For all diseases)
C21232 Quality of Life - Mistake self critical past week scale

The scale representing how often the participant was critical of himself/herself for their mistakes in the past 7 days, as part of Neuro-QOL Depression

 Supplemental Neuro-QOL Adult Bank - Depression True General (For all diseases) General (For all diseases)
C21231 Quality of Life - Everything extra effort complete past week scale

The scale representing how often the participant felt that everything they did was an effort in the past 7 days, as part of Neuro-QOL Depression

 Supplemental Neuro-QOL Adult Bank - Depression True General (For all diseases) General (For all diseases)
C21230 Quality of Life - Clear telephone speech difficulty scale

The scale which represents the amount of difficulty the participant currently has in speaking clearly enough to use the telephone, as part of Neuro-QOL Communication

 Supplemental Neuro-QOL Adult Bank - Communication True General (For all diseases) General (For all diseases)
C21229 Quality of Life - Verbal communication organization difficulty scale

The scale which represents the amount of difficulty the participant currently has in organizing what they want to say, as part of Neuro-QOL Communication

 Supplemental Neuro-QOL Adult Bank - Communication True General (For all diseases) General (For all diseases)
C21228 Quality of Life - Conversation familiar people difficulty scale

The scale which represents the amount of difficulty the participant currently has in carrying on a conversation with a small group of familiar people (e.g., family or a few friends), as part of Neuro-QOL Communication

 Supplemental Neuro-QOL Adult Bank - Communication True General (For all diseases) General (For all diseases)
C21227 Quality of Life - Family friend phone understand difficulty scale

The scale which represents the amount of difficulty the participant currently has in understanding family and friends over the phone, as part of Neuro-QOL Communication

 Supplemental Neuro-QOL Adult Bank - Communication True General (For all diseases) General (For all diseases)
C21226 Quality of Life - Write task list difficulty scale

The scale which represents the amount of difficulty the participant currently has in writing notes to himself/herself or 'to do' lists, as part of Neuro-QOL Communication

 Supplemental Neuro-QOL Adult Bank - Communication True General (For all diseases) General (For all diseases)
C21225 Quality of Life - Trouble plan task step past week scale

The scale representing how often the participant had trouble planning out steps of a task in the past 7 days, as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C21224 Quality of Life - Trouble make decision past week scale

The scale representing how often the participant had trouble making decisions in the past 7 days, as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
C21223 Quality of Life - Trouble start simple task past week scale

The scale representing how often the participant had trouble getting started on very simple tasks in the past 7 days, as part of Neuro-QOL Cognitive Function

 Supplemental Neuro-QOL Adult Bank - Cognitive Function True General (For all diseases) General (For all diseases)
Displaying 101 - 125 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.