CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 740
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02012 Study drug dose frequency

Frequency of use of study drug

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

 Supplemental Prior and Concomitant Medications False General (For all diseases) General (For all diseases)
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

 Supplemental Prior and Concomitant Medications False General (For all diseases) General (For all diseases)
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

 Supplemental Prior and Concomitant Medications False General (For all diseases) General (For all diseases)
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

 Supplemental Prior and Concomitant Medications False General (For all diseases) General (For all diseases)
C02017 Study drug start date and time

Date (and time, if applicable and known) on which the study drug usage begins

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02018 Study drug dispensed count

Count of amount of study drug dispensed to the participant/subject

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02019 Study drug actual return count

Count of amount of study drug returned

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02020 Study drug expected returned count

Count of expected amount of study drug returned

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02021 Study drug expected taken count

Count of expected amount of study drug taken

 Supplemental Study Drug Compliance False General (For all diseases) General (For all diseases)
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

 Supplemental Prior and Concomitant Medications False General (For all diseases) General (For all diseases)
C02023 Study drug dose unit of measure

Unit of measure of the study drug dosage administered

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02024 Medication prior or concomitant indication text

Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject

 Supplemental Prior and Concomitant Medications False General (For all diseases) General (For all diseases)
C02025 Medication prior or concomitant RXNorm code

Code for name of the prior/concomitant agent or drug administered

 Supplemental Prior and Concomitant Medications False General (For all diseases) General (For all diseases)
C02026 Study drug dose unit of measure UCUM code

Code that represents the dosage unit of measure of the study drug administered

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02200 Last study intervention date and time

Date (and time, if applicable) of the last known study intervention that the participant/subject received

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C02201 Off study intervention prematurely indicator

Indicator that participant/subject discontinued study intervention before planned end of study

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C02202 Off study date and time

Date (and time, if applicable and known) when participant/subject completes study or is prematurely withdrawn from study (i.e., is not being followed and will not receive intervention/treatment)

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C02203 Off study reason

Primary reason participant/ subject is no longer participating in study (i.e., is not being followed and will not receive intervention/treatment)

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C02204 Protocol deviation occurrence date and time

Date (and time, if applicable and known) on which the protocol deviation occurred

 Supplemental Protocol Deviations False General (For all diseases) General (For all diseases)
C02205 Protocol deviation description text

Description of the protocol deviation which includes reasons and contributing factors

 Supplemental Protocol Deviations False General (For all diseases) General (For all diseases)
C02206 Protocol deviation occurrence indicator

Indicator of whether any protocol deviations took place during the participant's/subject's involvement in the study

 Supplemental Protocol Deviations False General (For all diseases) General (For all diseases)
C02209 Informed consent obtained indicator

Indicator of whether informed consent was obtained for the participant/subject to participate in the clinical research study

 Supplemental Screening Log False General (For all diseases) General (For all diseases)
C02209 Informed consent obtained indicator

Indicator of whether informed consent was obtained for the participant/subject to participate in the clinical research study

 Supplemental Informed Consent and Enrollment False General (For all diseases) General (For all diseases)
C02210 Enrolled in study indicator

Indicator of whether the participant/subject was enrolled into the clinical research study

 Supplemental Screening Log False General (For all diseases) General (For all diseases)
Displaying 101 - 125 of 740

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.