CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0925-C17499	C17499	Special education indicator	Indicator as to whether the participant/subject has or had special education	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C17500	C17500	Specialized therapy service indicator	Indicator as to whether the participant/subject receives or received specialized therapies and services	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C18821	C18821	School placement other text	The free-text field related to 'School placement type' specifying other text. The description of the type of education the participant/subject receives with details of being with or without assistance	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00700	C00700	Alcohol use stopped age value	Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00702	C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00703	C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00704	C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00705	C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00706	C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00708	C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00709	C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00710	C00710	Tobacco current use indicator	Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time	Supplemental-Highly Recommended	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00711	C00711	Tobacco prior use indicator	Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00712	C00712	Subscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00713	C00713	Drug or substance current illicit use indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts	Supplemental-Highly Recommended	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00714	C00714	Behavioral history assessment date and time	Date (and time, if applicable and known) the participant/subject behavioral history was taken	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00719	C00719	Tobacco product used type	Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C18670	C18670	Subscribed drug or substance illicitly used category other text	The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0927-C08147	C08147	Data source	Source of the data provided on the case report form	Exploratory	History Data Source and Reliability	False	Friedreich's Ataxia	Friedreich's Ataxia
F0927-C11133	C11133	History data not obtained reason	Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)	Exploratory	History Data Source and Reliability	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 101 - 125 of 447

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.