CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58759 Left ventricle outflow tract diameter measurement

The measurement in centimeters of the diameter of the left ventricular outflow tract

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10760 ECG LVH voltage criteria met indicator

Whether voltage criteria for left ventricular hypertrophy (LVH) (any of the following: R or S in limb leads = 20 mm; S in V1 or V2 =30mm; R in V5 or V6 = 30 mm) were met as assessed by electrocardiography (ECG)

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11931 Modified Fatigue Impact Scale (MFIS) - cognitive score

Sum of MFIS Cognitive items (range: 0-40)

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C10604 Cardiac MRI relative wall thickness measurement

The relative wall thickness measured by cardiac Magnetic Resonance Imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C11997 Timed 25-Foot Walk (T25FW) - trial 1 not completed reason

Indicator of the reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C17475 Cardiovascular history cardiac surgery type

Type of cardiac surgery or mechanical intervention the participant/subject underwent

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C10723 Echocardiogram completed indicator

Whether an echocardiogram was performed on the participant/subject

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58700 Cardiac magnetic resonance heart rate integer

Integer for the value in beats per minute of the patient's heart rate as determined by cardiac magnetic resonance imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C17484 Psychiatric history clinical anxiety past year indicator

Indicator as to whether the participant/subject had clinical anxiety within the last year

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10680 Unpaid assistance per day hours number

How many hours in a typical 24-hour day do you have someone with you [unpaid assistance] to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility?

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C10732 Echocardiogram right ventricular enlargement status

Status of right ventricular enlargement on the echocardiogram

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58708 Cardiac magnetic resonance native T1 relaxation time duration

Duration in milliseconds required for native T1 relaxation as determined by cardiac magnetic resonance imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

Supplemental General Core Friedreich's Ataxia Friedreich's Ataxia
C19058 Psychiatric history psychotic diagnosis other text

The free-text field related to 'Psychiatric history psychotic diagnosis type' specifying other text. Type of psychotic disorder the participant/subject has been diagnosed with, if any

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C01704 Pregnancy test specimen type

Type of specimen collected to perform the pregnancy test

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10742 Echocardiogram mitral valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04507 ECG complete bundle branch block status

Status of complete bundle branch block on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11915 Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score

Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C10546 Depression first episode diagnosed age value

Value representing the age, in years, at which the participant/subject experienced her or his first depressive episode or was first diagnosed with depression, whichever is earlier

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C11923 Modified Fatigue Impact Scale (MFIS) - trouble finish task require think score

Scale for having had trouble finishing tasks that require thinking as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C59007 American Heart Association heart failure stage classification status

Status of the participant's/subject's stage heart failure according to the American Heart Association (AHA) Stage of Heart Failure classifications

Supplemental Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C17467 Cardiovascular history arrhythmia atrial flutter indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial flutter

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
Displaying 126 - 150 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.