CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

447 results.
Operations
Selected 22 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10711 Walking cane use age started value

Age of the participant/subject when he/she began using a cane for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10705 Walking difficulty age interfered with activities value

Age of participant/subject when difficulty with walking interfered with activities

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C17511 Walking difficulty age need intermittent support indicator

Indicator used when participant/subject age when needing intermittent support for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C17512 Walking difficulty age need permanent support indicator

Indicator related to age of participant/subject needing permanent support for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10704 Walking difficulty age others noticed value

Age when other people first noticed the participant's/subject's gait disturbances

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10707 Walking difficulty age permanent support started value

Age of participant/subject when permanent support first needed walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10703 Walking difficulty age started value

Age when participant/subject first noticed problems with walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10706 Walking difficulty age support first needed value

Age of participant/subject when intermittent support first needed for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10701 Walking difficulty level status

Status that reflects the participant's/subject's current level of walking difficulty

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10721 Walking other assistive device use age started value

Age of the participant/subject when he/she began using the other assistive device for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10720 Walking other assistive device use indicator

Indicator whether the participant/subject uses any other assistive device for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10702 Walking own unable reason

Reason why the participant/subject is unable to walk on his/her own

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10722 Walking primary assistive device daily use duration

Duration for which the participant/subject uses her or his primary assistive walking device on a daily basis

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10712 Walking use 2 cane crutch indicator

Indicator whether the participant/subject uses two canes or crutches for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C17517 Wheelchair primary mobility means age indicator

Indicator used related age of participant/subject when they first began to use a wheelchair as their primary means of mobility

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10708 Wheelchair primary mobility means age value

Age of participant/subject when they first began to use a wheelchair as their primary means of mobility

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10718 Wheelchair use indicator

Indicator whether the participant/subject uses a wheelchair

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10677 ZIP partial code

First three digits of the zip code where the participant/subject currently lives

Exploratory Demographics Friedreich's Ataxia Friedreich's Ataxia
447 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.