CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 226 - 250 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2825-C58683	C58683	Echocardiogram performed circumstance indicator	Circumstances under which this echocardiogram was performed should be indicated as either normal screening, changes in symptoms, provoked event, unknown or other. If there is another reason, specify the circumstance	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C00206	C00206	Family income supported persons count	Count of all people, including the participant/subject, who are supported by the household gross annual income reported	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58702	C58702	Cardiac magnetic resonance cardiac index value	Value of the patient's cardiac index (CI), defined as liters per minute of cardiac output per square meter of body surface area	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17486	C17486	Psychiatric history clinical depressive diagnosis indicator	Indicator as to whether the participant/subject had a depressive disorder diagnosis	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C11132	C11132	Heart rhythm result	The number of measured movements (rhythm) of a beating heart expressed in words rather than numbers	Supplemental	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58765	C58765	Echocardiogram left ventricle mass index value	Left ventricle mass index (LVMI) measurement –Record the value as an integer with no decimal place in grams/m2 (g/m2). Calculated variable (LVM/BSA)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04501	C04501	ECG assessment date and time	Date (and time, if applicable and known) the electrocardiogram (ECG/EKG) was administered	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0922-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58773	C58773	Tissue Doppler lateral tricuspid annual late diastolic velocity measurement	Measurement of the annual late diastolic velocity of the tissue doppler lateral tricuspid annulus (Rv a')	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04509	C04509	ECG PR interval	Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (ECG/EKG) being recorded	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01720	C01720	Lab test LOINC code	Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C10874	C10874	Holter exam maximum heart rate	Maximum heart rate measured during the Holter examination	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17461	C17461	Cancer history type text	Text description of the type of cancer the participant/subject was or is diagnosed with	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10740	C10740	Echocardiogram left ventricle ejection fraction measurement	Measurement of the fraction of blood pumped out of the left ventricles with each heart beat obtained by echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10708	C10708	Wheelchair primary mobility means age value	Age of participant/subject when they first began to use a wheelchair as their primary means of mobility	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11913	C11913	Modified Fatigue Impact Scale (MFIS) - forgetful score	Scale for having been forgetful as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C10754	C10754	ECG performed indicator	The indicator of whether an electrocardiogram (ECG) was performed on the participant/subject	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10716	C10716	Canine assistance use indicator	Indicator whether the participant/subject uses canine assistance for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11921	C11921	Modified Fatigue Impact Scale (MFIS) - muscle weak score	Scale for feeling weak in muscles as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C18778	C18778	ECG ventricular arrhythmia type other text	The free-text field related to 'ECG ventricular arrhythmia type', specifying other text. Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0924-C10556	C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental	Pregnancy History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C17512	C17512	Walking difficulty age need permanent support indicator	Indicator related to age of participant/subject needing permanent support for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11929	C11929	Modified Fatigue Impact Scale (MFIS) - rest more often longer score	Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.