CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 447
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C04503 ECG heart rate

Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C01708 Lab test performed indicator

Indicator of whether the lab test has been performed on the participant/subject

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58763 Cardiac output value

Value in liters per minute of the cardiac output (CO), calculated as stroke volume (SV) multiplied by heart rate (HR) divided by 1,000

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C11925 Modified Fatigue Impact Scale (MFIS) - unable complete task physical effort score

Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C11990 Timed 25-Foot Walk (T25FW) - ankle foot orthosis status

Indicator whether the participant/subject wore an ankle-foot orthosis (AFO) during the assessment, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C04511 ECG QT interval

Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (ECG/EKG) being recorded

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58771 Tissue doppler mitral annulus lateral wall s prime velocity measurement

Measurement of the systolic wave velocity of the tissue doppler lateral wall (s prime)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11933 Modified Fatigue Impact Scale (MFIS) - total score

Total MFIS score (range: 0-84)

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C11999 Timed 25-Foot Walk (T25FW) - trial 2 circumstances affecting performance text

Record in text any circumstances that affected the patient's performance for a completed Trial 2, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C58779 Tissue doppler mitral annulus septal medial wall s prime velocity measurement

Measurement of the systolic wave velocity of the tissue doppler mitral annulus septal wall

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Physical Examination Friedreich's Ataxia Friedreich's Ataxia
C10725 Echocardiogram left ventricular posterior wall thickness end diastole measurement

Measurement of left ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58696 Cardiac magnetic resonance left ventricular mass index integer

Integer representing the cardiac magnetic resonance imaging left ventricular mass index

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58692 Holter exam duration day count

Count of whole or partial days elapsed during the Holder exam, up to 14 days

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry

Supplemental Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C10609 Hospitalization reason

Reason why the participant/subject was hospitalized, excluding all surgeries

Supplemental Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C10734 Echocardiogram left ventricle mass measurement

Left ventricle mass (index) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10703 Walking difficulty age started value

Age when participant/subject first noticed problems with walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C11909 Modified Fatigue Impact Scale (MFIS) - less alert score

Scale for being less alert as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C17469 Cardiovascular history arrhythmia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C00028 Language spoken fluent ISO code

Code (ISO 639-2)for each language that the participant/subject speaks fluently

Supplemental Demographics Friedreich's Ataxia Friedreich's Ataxia
C10503 Neonatal problems indicator

Whether the participant/subject has a history of problems as an infant during the first month after birth

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C17477 Cardiovascular history congenital heart disease indicator

Indicator as to whether the participant/subject has or had a congenital heart disease

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
Displaying 201 - 225 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.