CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 447
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Friedreich's Ataxia Friedreich's Ataxia
C10507 Genetic diagnosis confirmation type

Manner in which genetic diagnosis was confirmed

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10509 Genetic diagnosis established by lab name

Name of the clinical laboratory who performed the genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10508 Genetic diagnosis established date and time

Date (and time if applicable and known) the genetic diagnosis was established

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10510 Genetic diagnosis established in city name

City where the clinical laboratory that performed the genetic testing is located

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10511 Genetic diagnosis established in country name

Country where the clinical laboratory that performed the genetic testing is located

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10514 Genetic diagnosis point mutation result

The result of the genetic testing revealed a point mutation describe the position and amino acid change

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C10557 Gravida value

Value representing the number of times the participant/subject has been pregnant, regardless of whether these pregnancies were carried to term

Supplemental Pregnancy History Friedreich's Ataxia Friedreich's Ataxia
C17498 Hand preference before 12 month age indicator

Indicator as to whether the participant/subject had a hand preference before 12 months of age

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Core Physical Examination Friedreich's Ataxia Friedreich's Ataxia
C10521 Hearing affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's hearing

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C58686 Heart palpitation history indicator

Indicator of whether the patient has a history of heart palpitations

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

Core Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C58762 Heart rate value

Value in beats per minute of the subject/participant's heart rate

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11132 Heart rhythm result

The number of measured movements (rhythm) of a beating heart expressed in words rather than numbers

Supplemental Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C58687 Heart symptomatic arrhythmias atrial origin history indicator

Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of atrial origin

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58688 Heart symptomatic arrhythmias ventricular origin history indicator

Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of ventricular origin

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C01522 Height measurement

Measurement of participant's/subject's height

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C01582 Height unit of measure

Unit of measure for the height numerical value for subject/participant

Supplemental-Highly Recommended Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C17503 Hemoglobin electrophoresis type

Type of hemoglobin that was identified by the electrophoresis test being reported

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C18824 History data not obtained other text

The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C11133 History data not obtained reason

Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
Displaying 201 - 225 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.