CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 447
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10875 Holter exam minimum heart rate

Minimum heart rate measured during the Holter examination

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C10518 Scoliosis last assessment date and time

Date (and time if applicable and known) the participant/subject was last assessed for scoliosis

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00704 Alcohol drinking day average drinks consumed range

The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C18805 Hospitalization other text

The free-text field related to 'Hospitalization reason' specifying other text. Reason why the participant/subject was hospitalized, excluding all surgeries

Supplemental Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C18618 Neonatal problem other text

Specify in text the problems other than those listed that occurred during the neonatal period

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10704 Walking difficulty age others noticed value

Age when other people first noticed the participant's/subject's gait disturbances

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10770 Echocardiogram left ventricular end diastolic internal dimension z score

Calculated z-score for the left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C00712 Subscribed drug or substance illicitly used category

Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C10712 Walking use 2 cane crutch indicator

Indicator whether the participant/subject uses two canes or crutches for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58758 Echocardiogram performed circumstance other reason

Specific other reason describing the circumstance under which the echocardiogram as performed

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10759 ECG premature ventricular contractions status

Status of absence or presence for an electrocardiographic finding of premature ventricular contractions (PVCs)

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10720 Walking other assistive device use indicator

Indicator whether the participant/subject uses any other assistive device for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58766 Early diastolic transmitral flow velocity measurement

Measurement in centimeters per second of the early diastolic transmitral flow velocity (E)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration

Supplemental Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C58774 Tissue doppler lateral tricuspid annulus annual systolic peak velocity measurement

Measurement of the annual systolic peak velocity of the tissue doppler lateral tricuspid annulus (Rv s')

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C02024 Medication prior or concomitant indication text

Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject

Supplemental Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C19057 Diabetes mellitus complications other text

The free-text field related to 'Diabetes mellitus complications type' specifying other text. Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's medical history

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10741 Echocardiogram aortic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04506 ECG right ventricular hypertrophy status

Status of right ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11914 Modified Fatigue Impact Scale (MFIS) - pace physical activity score

Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C10543 Cancer head or neck radiation treatment indicator

Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
Displaying 151 - 175 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.