CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2825-C10732	C10732	Echocardiogram right ventricular enlargement status	Status of right ventricular enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58708	C58708	Cardiac magnetic resonance native T1 relaxation time duration	Duration in milliseconds required for native T1 relaxation as determined by cardiac magnetic resonance imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C19058	C19058	Psychiatric history psychotic diagnosis other text	The free-text field related to 'Psychiatric history psychotic diagnosis type' specifying other text. Type of psychotic disorder the participant/subject has been diagnosed with, if any	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01704	C01704	Pregnancy test specimen type	Type of specimen collected to perform the pregnancy test	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10742	C10742	Echocardiogram mitral valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04507	C04507	ECG complete bundle branch block status	Status of complete bundle branch block on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11915	C11915	Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score	Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01713	C01713	Lab test result unit of measure UCUM code	Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C10546	C10546	Depression first episode diagnosed age value	Value representing the age, in years, at which the participant/subject experienced her or his first depressive episode or was first diagnosed with depression, whichever is earlier	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10706	C10706	Walking difficulty age support first needed value	Age of participant/subject when intermittent support first needed for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10772	C10772	Echocardiogram left atrial antero - posterior dimension z-score	Z-score calculated for the left atrial antero - posterior dimension measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00714	C00714	Behavioral history assessment date and time	Date (and time, if applicable and known) the participant/subject behavioral history was taken	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04514	C04514	ECG T wave abnormality status	Status of an abnormal T wave on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10714	C10714	Walker use indicator	Indicator whether the participant/subject uses a walker	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58760	C58760	Left ventricle outflow tract V1 doppler signal integral value	The value in centimeters of the V1 doppler signal integral of the left ventricle outflow tract (LVOT)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C18776	C18776	ECG atrial arrhythmia type other text	The free-text field related to 'ECG atrial arrhythmia type', specifying other text. Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10722	C10722	Walking primary assistive device daily use duration	Duration for which the participant/subject uses her or his primary assistive walking device on a daily basis	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58768	C58768	Transmitral flow deceleration duration	Duration in milliseconds of the time required for transmitral flow deceleration	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10504	C10504	Impaired physical ability during infancy indicator	Whether the participant/subject has a history of impaired physical abilities during infancy	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58776	C58776	Biplane left atrial volume measurement	Measurement of the biplane left atrial volume (LAV)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C10877	C10877	Holter exam heart block episode type	Type of episode(s) of heart block assessed during the Holter examination	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.