CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 447
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11086 School placement type

The description of the type of education the participant/subject receives with details of being with or without assistance

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale

The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Friedreich's Ataxia Friedreich's Ataxia
C17500 Specialized therapy service indicator

Indicator as to whether the participant/subject receives or received specialized therapies and services

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Friedreich's Ataxia Friedreich's Ataxia
C00723 APGAR ten minute score

Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11079 Neonate delivery route type

Route of delivery of the neonate

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C17501 Medical history information source family text

Text specifying the relation of the family member, from whom medical/family history information was obtained, to the participant

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C22800 Pregnancy or delivery risk factor other indicator

Indicate whether there are other pregnancy/delivery risk factors

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C17493 Attention deficit disorder attention deficit hyperactivity disorder indicator

Indicator as to whether the participant/subject has or had attention deficit disorder (ADD) or attention deficit hyperactivity disorder (ADHD)

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11516 Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity

The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Friedreich's Ataxia Friedreich's Ataxia
C18768 Therapy or rehabilitation other text

The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11964 Tardieu Scale relative velocity rate

The relative velocity (for a repeated measure) during administration of the Tardieu Scale assessment to measure muscle reaction through evaluation of spasticity and resistance to passive limb movement in a participant/subject

Exploratory Tardieu Scale Friedreich's Ataxia Friedreich's Ataxia
C11932 Modified Fatigue Impact Scale (MFIS) - psychosocial score

Sum of MFIS Psychosocial items (range: 0-8)

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C10605 Cardiac MRI hyper - enhancement by LGE indicator

Whether myocardial hyper-enhancement was found by late gadolinium enhancement (LGE) by the cardiac Magnetic Resonance Imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C11998 Timed 25-Foot Walk (T25FW) - trial 2 duration

The time it takes the participant/subject to walk 25 feet, as part of the Timed 25-Foot Walk (T25FW)

Supplemental Timed 25-Foot Walk (T25-FW) Friedreich's Ataxia Friedreich's Ataxia
C17476 Cardiovascular history condition indicator

Indicator as to whether the participant/subject has or had a cardiac condition or complication

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C00204 Employment current status

Status of participant/subject's current employment

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C10724 Echocardiogram performed date and time

Date (and time, if applicable and known) the echocardiography was performed

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58701 Cardiac magnetic resonance cardiac output integer

Value in liters per minute of the patient's cardiac output (CO) as determined by cardiac magnetic resonance imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C17485 Psychiatric history clinical depression past year indicator

Indicator as to whether the participant/subject has had clinical depression within the last year

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C11131 Body mass index value

Value of the participant/subject's body mass index, calculated from height and weight

Supplemental Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C10681 In-home assistance for remembering, decision making, or judgment duration

Amount of time per day the subject/participant requires the help of an assistant for decision making/remembering

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C10733 Echocardiogram right ventricular systolic dysfunction status

Status of right ventricular systolic dysfunction on the echocardiogram

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04500 ECG atrial arrhythmia type

Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Friedreich's Ataxia Friedreich's Ataxia
Displaying 101 - 125 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.