CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17496 Delay social function indicator

Indicator as to whether the participant/subject has or had delayed social function

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C18619 Delayed motor milestone specify text

Specify in text the motor milestones that are were delayed

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10505 Delayed motor milestones indicator

Whether the participant/subject has a history of delayed motor milestones. If participant had delayed motor milestones, indicate type of delayed motor milestones

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C18804 Delayed motor milestones specify text

The free-text field related to 'Delayed motor milestones indicator'. Whether the participant/subject has a history of delayed motor milestones. If participant had delayed motor milestones, indicate type of delayed motor milestones

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11081 Delivery caesarean timing status

Status of the caesarean delivery

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11082 Delivery extraction indicator

Indicator as to whether or not the participant's/subject's birth was assisted with an extraction method

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11083 Delivery extraction type

Type of extraction used to assist with the delivery of the participant/subject

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11080 Delivery modality type

Type of modality of the participant/subject's intrauterine orientation at delivery

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11078 Delivery mode type

Type of delivery mode of the neonate

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C10558 Delivery or pregnancy termination last date and time

Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)

Supplemental Pregnancy History Friedreich's Ataxia Friedreich's Ataxia
C10546 Depression first episode diagnosed age value

Value representing the age, in years, at which the participant/subject experienced her or his first depressive episode or was first diagnosed with depression, whichever is earlier

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10539 Diabetes first diagnosis age value

Value representing the age, in years, at which the participant/subject was first diagnosed with diabetes mellitus

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C19057 Diabetes mellitus complications other text

The free-text field related to 'Diabetes mellitus complications type' specifying other text. Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C17480 Diabetes mellitus complications type

Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C17482 Diabetes mellitus indicator

Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C06358 Diabetes mellitus type

Type of diabetes mellitus

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10541 Diabetes treatment type

Type of treatment the participant/subject is receiving or has received for diabetes mellitus

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10501 Diagnosis initial age value

Age of the participant/subject when initially diagnosed with disease/disorder

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C58691 Dizziness near syncope history indicator

Indicator of whether the patient has a history of dizziness or of near syncope

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C10695 Dressing level status

Status that reflects the participant's/subject's current level of dressing ability

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C00713 Drug or substance current illicit use indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts

Supplemental-Highly Recommended Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C58766 Early diastolic transmitral flow velocity measurement

Measurement in centimeters per second of the early diastolic transmitral flow velocity (E)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04501 ECG assessment date and time

Date (and time, if applicable and known) the electrocardiogram (EKG) was administered

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C18776 ECG atrial arrhythmia other text

The free-text field related to 'ECG atrial arrhythmia type' specifying other text. Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04500 ECG atrial arrhythmia type

Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
Displaying 101 - 125 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.