CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 447
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01706 Lab test result text

Result of the laboratory test

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C00321 Medical history for body system indicator

Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system

Core Medical History Friedreich's Ataxia Friedreich's Ataxia
C58686 Heart palpitation history indicator

Indicator of whether the patient has a history of heart palpitations

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58710 Frataxin level status

Level of frataxin

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

Core Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C10514 Genetic diagnosis point mutation result

The result of the genetic testing revealed a point mutation describe the position and amino acid change

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Core Physical Examination Friedreich's Ataxia Friedreich's Ataxia
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C17496 Delay social function indicator

Indicator as to whether the participant/subject has or had delayed social function

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11519 Bowel Control Scale (BWCS) - bowel control loss 4 week scale

Scale assessing how often the participant/subject lost control of bowels or had an accident in the past 4 weeks as part of the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Friedreich's Ataxia Friedreich's Ataxia
C17541 Tardieu Scale assistive device text

Text identifying an assistive device used by the participant/subject for an immovable joint in a limb

Exploratory Tardieu Scale Friedreich's Ataxia Friedreich's Ataxia
C11081 Delivery caesarean timing status

Status of the caesarean delivery

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C17497 Gait abnormal when began walking indicator

Indicator as to whether the participant/subject had a gait abnormality at the time they began walking, as noted by parents or a physician

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11520 Bowel Control Scale (BWCS) - bowel control almost lost 4 week scale

Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Friedreich's Ataxia Friedreich's Ataxia
C11082 Delivery extraction indicator

Indicator as to whether or not the participant's/subject's birth was assisted with an extraction method

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Exploratory Demographics Friedreich's Ataxia Friedreich's Ataxia
C11066 Pregnancy or delivery risk factor type

Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C11513 Bladder Control Scale (BLCS) - lost control bladder 4 week scale

The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Friedreich's Ataxia Friedreich's Ataxia
C17498 Hand preference before 12 month age indicator

Indicator as to whether the participant/subject had a hand preference before 12 months of age

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11521 Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale

Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Friedreich's Ataxia Friedreich's Ataxia
C08147 Data source

Source of the data provided on the case report form

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C11083 Delivery extraction type

Type of extraction used to assist with the delivery of the participant/subject

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C10677 ZIP partial code

First three digits of the zip code where the participant/subject currently lives

Exploratory Demographics Friedreich's Ataxia Friedreich's Ataxia
Displaying 51 - 75 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.