CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 376 - 400 of 447

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2746-C11926	C11926	Modified Fatigue Impact Scale (MFIS) - think slow down score	Scale for slowed down thinking as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C11991	C11991	Timed 25-Foot Walk (T25FW) - assistive device status	Indicator whether the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17470	C17470	Cardiovascular history arrhythmia other text	Text description of any cardiac arrhythmia the participant/subject has or had in a form other than atrial fibrillation, atrial flutter, supraventricular tachycardia, ventricular tachycardia, or bradycardia	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0929-C01028	C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C17824	C17824	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less able complete tasks requiring physical effort scale	Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58695	C58695	Circumstance Cardiac Magnetic Resonance performed reason	Reason for which the cardiac magnetic resonance imaging was performed	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C12000	C12000	Timed 25-Foot Walk (T25FW) - trial 2 not completed reason	Specify the type of reason Trial 2 was not completed by the participant/subject, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17478	C17478	Cardiovascular history heart failure indicator	Indicator as to whether the participant/subject has ever experienced heart failure	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C17517	C17517	Wheelchair primary mobility means age indicator	Indicator used related age of participant/subject when they first began to use a wheelchair as their primary means of mobility	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58771	C58771	Tissue doppler mitral annulus lateral wall s prime velocity measurement	Measurement of the systolic wave velocity of the tissue doppler lateral wall (s prime)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58779	C58779	Tissue doppler mitral annulus septal medial wall s prime velocity measurement	Measurement of the systolic wave velocity of the tissue doppler mitral annulus septal wall	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C58692	C58692	Holter exam duration day count	Count of whole or partial days elapsed during the Holder exam, up to 14 days	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10701	C10701	Walking difficulty level status	Status that reflects the participant's/subject's current level of walking difficulty	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00709	C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10709	C10709	Walking assistive device indicator	Indicator of whether the participant/subject uses an assistive device for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C54234	C54234	Echocardiogram right interventricular septal thickness end diastole measurement	Measurement of right ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C18670	C18670	Subscribed drug or substance illicitly used category other text	The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C10756	C10756	ECG premature atrial contractions status	Status of absence or presence for an electrocardiographic finding of premature atrial contractions	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10717	C10717	Canine assistance use age started value	Age of the participant/subject when he/she began using canine assistance	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58763	C58763	Cardiac output value	Value in liters per minute of the cardiac output (CO), calculated as stroke volume (SV) multiplied by heart rate (HR) divided by 1,000	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C58684	C58684	Circumstance ECG performed reason	Reason the electrocardiogram (ECG) was performed	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0924-C10557	C10557	Gravida value	Value representing the number of times the participant/subject has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental	Pregnancy History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C01554	C01554	Oxygen saturation measurement	Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry	Supplemental	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 376 - 400 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.