CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 447
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10878 Holter exam arrhythmias identified indicator

The indicator of whether any arrhythmias were identified during the Holter examination

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C17463 Cardiovascular history abnormal echocardiogram indicator

Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG)

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C00707 Alcohol consume six or more drinks frequency

The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C18804 Delayed motor milestones specify text

The free-text field related to 'Delayed motor milestones indicator'. Whether the participant/subject has a history of delayed motor milestones. If participant had delayed motor milestones, indicate type of delayed motor milestones

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10707 Walking difficulty age permanent support started value

Age of participant/subject when permanent support first needed walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C17471 Cardiovascular history arrhythmia supraventricular tachycardia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of supraventricular tachycardia

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10776 Echocardiogram left ventricle mass z-score value

Calculated z-score for the left ventricle mass (index) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C00719 Tobacco product used type

Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C04515 ECG ventricular arrhythmia type

Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10715 Walker use age started value

Age of the participant/subject when he/she began using a walker

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C17479 Cardiovascular history ischemia heart disease indicator

Indicator as to whether the participant/subject has or had ischemia heart disease

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C58761 Stroke volume value

Value in milliliters of the stroke volume

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C18777 ECG heart rhythm result type other text

The free-text field related to 'ECG heart rhythm result type', specifying other text. Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C17511 Walking difficulty age need intermittent support indicator

Indicator used when participant/subject age when needing intermittent support for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C17488 Psychiatric history psychotic diagnosis type

Type of psychotic disorder the participant/subject has been diagnosed with, if any

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C58769 Tissue doppler mitral annulus lateral wall e prime velocity measurement

Measurement of early filling velocity of the tissue doppler lateral wall (e prime)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10505 Delayed motor milestones indicator

Whether the participant/subject has a history of delayed motor milestones. If participant had delayed motor milestones, indicate type of delayed motor milestones

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

Supplemental Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C10734 Echocardiogram left ventricle mass measurement

Left ventricle mass (index) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04501 ECG assessment date and time

Date (and time, if applicable and known) the electrocardiogram (ECG/EKG) was administered

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11909 Modified Fatigue Impact Scale (MFIS) - less alert score

Scale for being less alert as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C10744 Echocardiogram left ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04509 ECG PR interval

Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (ECG/EKG) being recorded

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11917 Modified Fatigue Impact Scale (MFIS) - limit ability activity away from home score

Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
Displaying 301 - 325 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.