CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 447
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10742 Echocardiogram mitral valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04507 ECG complete bundle branch block status

Status of complete bundle branch block on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11915 Modified Fatigue Impact Scale (MFIS) - less motivate physical effort score

Scale for having been less motivated to do anything that requires physical effort as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

Supplemental Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C10546 Depression first episode diagnosed age value

Value representing the age, in years, at which the participant/subject experienced her or his first depressive episode or was first diagnosed with depression, whichever is earlier

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C10714 Walker use indicator

Indicator whether the participant/subject uses a walker

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58760 Left ventricle outflow tract V1 doppler signal integral value

The value in centimeters of the V1 doppler signal integral of the left ventricle outflow tract (LVOT)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C18776 ECG atrial arrhythmia type other text

The free-text field related to 'ECG atrial arrhythmia type', specifying other text. Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10722 Walking primary assistive device daily use duration

Duration for which the participant/subject uses her or his primary assistive walking device on a daily basis

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C58768 Transmitral flow deceleration duration

Duration in milliseconds of the time required for transmitral flow deceleration

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10504 Impaired physical ability during infancy indicator

Whether the participant/subject has a history of impaired physical abilities during infancy

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

Supplemental Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C58776 Biplane left atrial volume measurement

Measurement of the biplane left atrial volume (LAV)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
C10877 Holter exam heart block episode type

Type of episode(s) of heart block assessed during the Holter examination

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C10521 Hearing affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's hearing

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C10706 Walking difficulty age support first needed value

Age of participant/subject when intermittent support first needed for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10772 Echocardiogram left atrial antero - posterior dimension z-score

Z-score calculated for the left atrial antero - posterior dimension measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C00714 Behavioral history assessment date and time

Date (and time, if applicable and known) the participant/subject behavioral history was taken

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C04514 ECG T wave abnormality status

Status of an abnormal T wave on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11924 Modified Fatigue Impact Scale (MFIS) - difficult organize thought home work score

Scale for having had difficulty organizing thoughts when doing things at home or at work as part of Modified Fatigue Impact Scale form

Supplemental Modified Fatigue Impact Scale (MFIS) Friedreich's Ataxia Friedreich's Ataxia
C59008 Hospital admission start date

Date the participant/subject was admitted to the hospital

Supplemental Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C17468 Cardiovascular history arrhythmia bradycardia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of bradycardia

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C01014 Physical exam abnormality significance type

An indication if the physical exam abnormality in a specific body system is clinically significant

Supplemental Physical Examination Friedreich's Ataxia Friedreich's Ataxia
Displaying 276 - 300 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.