CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0926-C00709	C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10702	C10702	Walking own unable reason	Reason why the participant/subject is unable to walk on his/her own	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10768	C10768	Echocardiogram left ventricular end-diastolic posterior wall thickness z score	Calculated z-score for the left ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11081	C11081	Delivery caesarean timing status	Status of the caesarean delivery	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10710	C10710	Walking 1 cane use indicator	Indicator whether the participant/subject uses one cane for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C06452	C06452	Neuromuscular scoliosis surgery treat indicator	Indicator of whether the scoliosis has been surgical treated	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C10757	C10757	ECG paroxysmal supraventricular tachycardia status	Status of presence or absence for an electrocardiographic finding of paroxysmal supraventricular tachycardia (PSVT)	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0924-C10557	C10557	Gravida value	Value representing the number of times the participant/subject has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental	Pregnancy History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10718	C10718	Wheelchair use indicator	Indicator whether the participant/subject uses a wheelchair	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10507	C10507	Genetic diagnosis confirmation type	Manner in which genetic diagnosis was confirmed	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C17496	C17496	Delay social function indicator	Indicator as to whether the participant/subject has or had delayed social function	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01701	C01701	Lab specimen collection date and time	Date (and time if applicable and known) when the specimen was collected	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10738	C10738	Echocardiogram peak systolic pressure gradient measurement	Peak systolic pressure gradient measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11912	C11912	Modified Fatigue Impact Scale (MFIS) - clumsy uncoordinated score	Scale for having been clumsy and uncoordinated as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01709	C01709	Lab test result status	Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17463	C17463	Cardiovascular history abnormal echocardiogram indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11920	C11920	Modified Fatigue Impact Scale (MFIS) - less motivate activity require think score	Scale for having been less motivated to do anything that requires thinking as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C17503	C17503	Hemoglobin electrophoresis type	Type of hemoglobin that was identified by the electrophoresis test being reported	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17471	C17471	Cardiovascular history arrhythmia supraventricular tachycardia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of supraventricular tachycardia	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0929-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 226 - 250 of 447

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.