CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10557 Gravida value

Value representing the number of times the participant/subject has been pregnant, regardless of whether these pregnancies were carried to term

 Supplemental Pregnancy History False Friedreich's Ataxia Friedreich's Ataxia
C10507 Genetic diagnosis confirmation type

Manner in which genetic diagnosis was confirmed

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C17496 Delay social function indicator

Indicator as to whether the participant/subject has or had delayed social function

 Exploratory Pediatric Developmental History False Friedreich's Ataxia Friedreich's Ataxia
C11519 Bowel Control Scale (BWCS) - bowel control loss 4 week scale

Scale assessing how often the participant/subject lost control of bowels or had an accident in the past 4 weeks as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10693 Swallowing level status

Status that reflects the participant's/subject's current level of swallowing ability

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C00701 Tobacco use stopped age value

Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

 Supplemental Behavioral History False Friedreich's Ataxia Friedreich's Ataxia
C17541 Tardieu Scale assistive device text

Text identifying an assistive device used by the participant/subject for an immovable joint in a limb

 Exploratory Tardieu Scale False Friedreich's Ataxia Friedreich's Ataxia
C10524 Ambulation affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's ambulatory ability

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10701 Walking difficulty level status

Status that reflects the participant's/subject's current level of walking difficulty

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

 Supplemental Behavioral History False Friedreich's Ataxia Friedreich's Ataxia
C11927 Modified Fatigue Impact Scale (MFIS) - trouble concentrate score

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11992 Timed 25-Foot Walk (T25FW) - unilateral assistance device type

Range, in sides of the body, for which the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Friedreich's Ataxia Friedreich's Ataxia
C17471 Cardiovascular history arrhythmia supraventricular tachycardia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of supraventricular tachycardia

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C00035 Gender type

Self-reported gender of the participant/subject

 Core Demographics False Friedreich's Ataxia Friedreich's Ataxia
C17825 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less alert scale

Scale for being less alert as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C12001 Timed 25-Foot Walk (T25FW) - more than two attempts indicator

Indicator of whether more than two attempts were required to obtain two successful trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

 Supplemental Timed 25-Foot Walk (T25-FW) False Friedreich's Ataxia Friedreich's Ataxia
C17479 Cardiovascular history ischemia heart disease indicator

Indicator as to whether the participant/subject has or had ischemia heart disease

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry

 Supplemental Vital Signs False Friedreich's Ataxia Friedreich's Ataxia
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

 Supplemental Social Status False Friedreich's Ataxia Friedreich's Ataxia
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False Friedreich's Ataxia Friedreich's Ataxia
C17488 Psychiatric history psychotic diagnosis type

Type of psychotic disorder the participant/subject has been diagnosed with, if any

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C01700 Specimen accession number

Number with which the specimen taken for the tests being reported was accessioned to the record storage facility

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core Medical History False Friedreich's Ataxia Friedreich's Ataxia
C10737 Echocardiogram left ventricular outflow tract obstruction indicator

Indicator of whether the echocardiogram shows that the participant/subject has a left ventricular outflow tract (LVOT)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
Displaying 176 - 200 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.