CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2746-C11926	C11926	Modified Fatigue Impact Scale (MFIS) - think slow down score	Scale for slowed down thinking as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C11991	C11991	Timed 25-Foot Walk (T25FW) - assistive device status	Indicator whether the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17470	C17470	Cardiovascular history arrhythmia other text	Text description of any cardiac arrhythmia the participant/subject has or had in a form other than atrial fibrillation, atrial flutter, supraventricular tachycardia, ventricular tachycardia, or bradycardia	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0929-C01028	C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C17824	C17824	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - less able complete tasks requiring physical effort scale	Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C12000	C12000	Timed 25-Foot Walk (T25FW) - trial 2 not completed reason	Specify the type of reason Trial 2 was not completed by the participant/subject, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17478	C17478	Cardiovascular history heart failure indicator	Indicator as to whether the participant/subject has ever experienced heart failure	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17487	C17487	Psychiatric history psychotic diagnosis text	Text identification of any psychotic disorder diagnosis made for the participant/patient	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C17502	C17502	Body mass index unit of measure	Unit of measure for body mass index for participant/subject	Supplemental	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10736	C10736	Echocardiogram left ventricular dilated indicator	Indicator of whether the echocardiogram shows that the participant/subject has a dilated left ventricle	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11910	C11910	Modified Fatigue Impact Scale (MFIS) - difficulty pay attention long period score	Scale for having difficulty paying attention for long periods of time as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01707	C01707	Lab test abnormality significance type	Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11918	C11918	Modified Fatigue Impact Scale (MFIS) - trouble maintain physical effort long time score	Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11063	C11063	Parity maternal value	Number of live born children the participant's/subject's mother has delivered	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17462	C17462	Cardiovascular history abnormal echocardiogram decreased left ventricular function indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG) specifically exhibiting decreased left ventricular (LV) function	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10709	C10709	Walking assistive device indicator	Indicator of whether the participant/subject uses an assistive device for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C10756	C10756	ECG premature atrial contractions status	Status of absence or presence for an electrocardiographic finding of premature atrial contractions	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11081	C11081	Delivery caesarean timing status	Status of the caesarean delivery	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10717	C10717	Canine assistance use age started value	Age of the participant/subject when he/she began using canine assistance	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C06452	C06452	Neuromuscular scoliosis surgery treat indicator	Indicator of whether the scoliosis has been surgical treated	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 151 - 175 of 447

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.