CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 447
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58695 Circumstance Cardiac Magnetic Resonance performed reason

Reason for which the cardiac magnetic resonance imaging was performed

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58703 Cardiac magnetic resonance left ventricular mass volume ratio value

Value in grams per milliliter of the mass-to-volume ratio of the patient's left ventricle mass and end diastolic volume

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58687 Heart symptomatic arrhythmias atrial origin history indicator

Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of atrial origin

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58711 GAA repeat expansion mutation size text

Text field for identifying the GAA repeat-expansion mutation

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58763 Cardiac output value

Value in liters per minute of the cardiac output (CO), calculated as stroke volume (SV) multiplied by heart rate (HR) divided by 1,000

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58684 Circumstance ECG performed reason

Reason the electrocardiogram (ECG) was performed

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58771 Tissue doppler mitral annulus lateral wall s prime velocity measurement

Measurement of the systolic wave velocity of the tissue doppler lateral wall (s prime)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58779 Tissue doppler mitral annulus septal medial wall s prime velocity measurement

Measurement of the systolic wave velocity of the tissue doppler mitral annulus septal wall

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58692 Holter exam duration day count

Count of whole or partial days elapsed during the Holder exam, up to 14 days

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C58696 Cardiac magnetic resonance left ventricular mass index integer

Integer representing the cardiac magnetic resonance imaging left ventricular mass index

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58704 Cardiac magnetic resonance right ventricular end diastolic volume integer

Integer for the value of the cardiac magnetic resonance imaging right ventricular end diastolic volume (RVEDV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58688 Heart symptomatic arrhythmias ventricular origin history indicator

Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of ventricular origin

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58712 Lab test method used type

Text field identifying the lab test method used

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58764 Left ventricular relative wall thickness value

Value of the relative wall thickness of the left ventricular wall, calculated as two multiplied by the left ventricular end-diastolic posterior wall thickness (PWTd) divided by the left ventricular end-diastolic internal dimension (LVIDd)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58772 Tissue Doppler lateral tricuspid annulus peak early diastolic velocity measurement

Measurement of the velocity of the tissue doppler lateral tricuspid annulus peak early diastolic (Rv e')

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58693 Cardiac implant device place indicator

Indicator of whether a cardiac implant device was placed

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C18770 Tobacco product used other text

The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C58713 Lab test sample type text

Text field for identifying the type of sample collected

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58697 Cardiac magnetic resonance left ventricular end diastolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58705 Cardiac magnetic resonance right ventricular end systolic volume integer

Integer for the value of the cardiac magnetic resonance imaging right ventricular end systolic volume (RVESV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C18678 Family history medical condition other text

The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C58689 Chest discomfort cardiac cause history indicator

Indicator of whether the patient has a history of chest discomfort that is suggestive of a cardiac cause

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58765 Echocardiogram left ventricle mass index value

Left ventricle mass index (LVMI) measurement –Record the value as an integer with no decimal place in grams/m2 (g/m2). Calculated variable (LVM/BSA)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58773 Tissue Doppler lateral tricuspid annual late diastolic velocity measurement

Measurement of the annual late diastolic velocity of the tissue doppler lateral tricuspid annulus (Rv a')

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58694 Cardiac implant device location anatomic site

Anatomic site of the cardiac implant device

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.