CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 715
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58696 Cardiac magnetic resonance left ventricular mass index integer

Integer representing the cardiac magnetic resonance imaging left ventricular mass index

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C58704 Cardiac magnetic resonance right ventricular end diastolic volume integer

Integer for the value of the cardiac magnetic resonance imaging right ventricular end diastolic volume (RVEDV) in milliliters

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C58763 Cardiac output value

Value in liters per minute of the cardiac output (CO), calculated as stroke volume (SV) multiplied by heart rate (HR) divided by 1,000.

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58771 Tissue doppler mitral annulus lateral wall s prime velocity measurement

Measurement of the systolic wave velocity of the tissue doppler lateral wall (s prime)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58686 Heart palpitation history indicator

Indicator of whether the patient has a history of heart palpitations.

 Core Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C58779 Tissue doppler mitral annulus septal medial wall s prime velocity measurement

Measurement of the systolic wave velocity of the tissue doppler mitral annulus septal wall

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58712 Lab test method used type

Text field identifying the lab test method used

 Supplemental-Highly Recommended Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C18666 Body system other text

The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

 Supplemental Physical Examination False Friedreich's Ataxia Friedreich's Ataxia
C58692 Holter exam duration day count

Count of whole or partial days elapsed during the Holder exam, up to 14 days

 Supplemental Holter Exam False Friedreich's Ataxia Friedreich's Ataxia
C21938 Pediatric Quality of Life Inventory (PedsQL) - Problem house chore difficulty scale

Scale of problems with doing chores around the house, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C21949 Pediatric Quality of Life Inventory (PedsQL) - Problem doctor hospital appointment school absent difficulty scale

Scale of problems with missing school to go to the doctor or hospital, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C21959 Pediatric Quality of Life Inventory (PedsQL) - Problem sleep trouble scale

Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C18770 Tobacco product used other text

The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

 Supplemental Behavioral History False Friedreich's Ataxia Friedreich's Ataxia
C58697 Cardiac magnetic resonance left ventricular end diastolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C58705 Cardiac magnetic resonance right ventricular end systolic volume integer

Integer for the value of the cardiac magnetic resonance imaging right ventricular end systolic volume (RVESV) in milliliters

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C58764 Left ventricular relative wall thickness value

Value of the relative wall thickness of the left ventricular wall, calculated as two multiplied by the left ventricular end-diastolic posterior wall thickness (PWTd) divided by the left ventricular end-diastolic internal dimension (LVIDd)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58772 Tissue Doppler lateral tricuspid annulus peak early diastolic velocity measurement

Measurement of the velocity of the tissue doppler lateral tricuspid annulus peak early diastolic (Rv e')

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58687 Heart symptomatic arrhythmias atrial origin history indicator

Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of atrial origin.

 Core Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C58713 Lab test sample type text

Text field for identifying the type of sample collected

 Supplemental-Highly Recommended Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C58693 Cardiac implant device place indicator

Indicator of whether a cardiac implant device was placed

 Supplemental Holter Exam False Friedreich's Ataxia Friedreich's Ataxia
C21939 Pediatric Quality of Life Inventory (PedsQL) - Problem low energy difficulty scale

Scale of problems with low energy, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C21950 Pediatric Quality of Life Inventory (PedsQL) - Problem school absent unwell difficulty scale

Scale of problems with missing school because of not feeling well, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C21960 Pediatric Quality of Life Inventory (PedsQL) - Problem sport activity exercise participation difficulty scale

Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C58694 Cardiac implant device location anatomic site

Anatomic site of the cardiac implant device

 Supplemental Holter Exam False Friedreich's Ataxia Friedreich's Ataxia
C58698 Cardiac magnetic resonance left ventricular end systolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end systolic volume (LVESV) in milliliters

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.