CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 715
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False Friedreich's Ataxia Friedreich's Ataxia
C22800 Pregnancy or delivery risk factor other indicator

Indicate whether there are other pregnancy/delivery risk factors

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C21933 Pediatric Quality of Life Inventory (PedsQL) - Problem fear scale

Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C18666 Body system other text

The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C21943 Pediatric Quality of Life Inventory (PedsQL) - Problem harmony peer difficulty scale

Scale of problems with getting along with other kids, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C18768 Therapy or rehabilitation other text

The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject

 Exploratory Pediatric Developmental History False Friedreich's Ataxia Friedreich's Ataxia
C21954 Pediatric Quality of Life Inventory(PedsQL) - Psychosocial health summary score

Psychosocial Health Summary Score as a part of Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C21964 Pediatric Quality of Life Inventory (PedsQL) - Problem walk greater than one block difficulty scale

Scale of problems with walking more than one block, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C58709 Lab test abnormality result too high too low indicator

Indication of lab panel test result, either too high or too low

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C58701 Cardiac magnetic resonance cardiac output integer

Value in liters per minute of the patient's cardiac output (CO) as determined by cardiac magnetic resonance imaging

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C58760 Left ventricle outflow tract V1 doppler signal integral value

The value in centimeters of the V1 doppler signal integral of the left ventricle outflow tract (LVOT)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58768 Transmitral flow deceleration duration

Duration in milliseconds of the time required for transmitral flow deceleration

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58776 Biplane left atrial volume measurement

Measurement of the biplane left atrial volume (LAV)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58691 Dizziness near syncope history indicator

Indicator of whether the patient has a history of dizziness or of near syncope

 Core Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core General Core False Friedreich's Ataxia Friedreich's Ataxia
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

 Exploratory History Data Source and Reliability False Friedreich's Ataxia Friedreich's Ataxia
C21934 Pediatric Quality of Life Inventory (PedsQL) - Problem angry scale

Scale of problems with feeling mad, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C21945 Pediatric Quality of Life Inventory (PedsQL) - Problem schoolwork difficulty scale

Scale of problems keeping up with schoolwork, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C21955 Pediatric Quality of Life Inventory (PedsQL) - Problem run difficulty scale

Scale of problems with running, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C21965 Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale

Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Friedreich's Ataxia Friedreich's Ataxia
C58710 Frataxin level status

Level of frataxin

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C58702 Cardiac magnetic resonance cardiac index value

Value of the patient's cardiac index (CI), defined as liters per minute of cardiac output per square meter of body surface area

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C58761 Stroke volume value

Value in milliliters of the stroke volume

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58769 Tissue doppler mitral annulus lateral wall e prime velocity measurement

Measurement of early filling velocity of the tissue doppler lateral wall (e prime)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58777 Tissue doppler mitral annulus septal medial wall e prime velocity measurement

Measurement of the early filling velocity of the tissue doppler mitral annulus septal wall

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.