CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58700 Cardiac magnetic resonance heart rate integer

Integer for the value in beats per minute of the patient's heart rate as determined by cardiac magnetic resonance imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58708 Cardiac magnetic resonance native T1 relaxation time duration

Duration in milliseconds required for native T1 relaxation as determined by cardiac magnetic resonance imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Friedreich's Ataxia Friedreich's Ataxia
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58768 Transmitral flow deceleration duration

Duration in milliseconds of the time required for transmitral flow deceleration

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58776 Biplane left atrial volume measurement

Measurement of the biplane left atrial volume (LAV)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C18768 Therapy or rehabilitation other text

The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C58760 Left ventricle outflow tract V1 doppler signal integral value

The value in centimeters of the V1 doppler signal integral of the left ventricle outflow tract (LVOT)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C22800 Pregnancy or delivery risk factor other indicator

Indicate whether there are other pregnancy/delivery risk factors

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C58701 Cardiac magnetic resonance cardiac output integer

Value in liters per minute of the patient's cardiac output (CO) as determined by cardiac magnetic resonance imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Friedreich's Ataxia Friedreich's Ataxia
C58709 Lab test abnormality result too high too low indicator

Indication of lab panel test result, either too high or too low

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C59008 Hospital admission start date

Date the participant/subject was admitted to the hospital

Supplemental Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58769 Tissue doppler mitral annulus lateral wall e prime velocity measurement

Measurement of early filling velocity of the tissue doppler lateral wall (e prime)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58777 Tissue doppler mitral annulus septal medial wall e prime velocity measurement

Measurement of the early filling velocity of the tissue doppler mitral annulus septal wall

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58761 Stroke volume value

Value in milliliters of the stroke volume

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C58702 Cardiac magnetic resonance cardiac index value

Value of the patient's cardiac index (CI), defined as liters per minute of cardiac output per square meter of body surface area

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C58686 Heart palpitation history indicator

Indicator of whether the patient has a history of heart palpitations

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58710 Frataxin level status

Level of frataxin

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58770 Tissue doppler mitral annulus lateral wall a prime velocity measurement

Measurement of the atrial filling velocity of the tissue doppler lateral wall (a prime)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58778 Tissue doppler mitral annulus septal medial wall a prime velocity measurement

Measurement of the atrial filling velocity of the tissue doppler mitral annulus septal wall

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C52586 Cardiac index value

Value of the cardiac index, which is the cardiac output from the left ventricle divided by the subject/participant's body surface area

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58762 Heart rate value

Value in beats per minute of the subject/participant's heart rate

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.