CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 715
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C22800 Pregnancy or delivery risk factor other indicator

Indicate whether there are other pregnancy/delivery risk factors

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C21933 Pediatric Quality of Life Inventory (PedsQL) - Problem fear scale

Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Friedreich's Ataxia Friedreich's Ataxia
C18666 Body system other text

The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C21943 Pediatric Quality of Life Inventory (PedsQL) - Problem harmony peer difficulty scale

Scale of problems with getting along with other kids, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Friedreich's Ataxia Friedreich's Ataxia
C18768 Therapy or rehabilitation other text

The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C21954 Pediatric Quality of Life Inventory(PedsQL) - Psychosocial health summary score

Psychosocial Health Summary Score as a part of Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Friedreich's Ataxia Friedreich's Ataxia
C21964 Pediatric Quality of Life Inventory (PedsQL) - Problem walk greater than one block difficulty scale

Scale of problems with walking more than one block, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Friedreich's Ataxia Friedreich's Ataxia
C58709 Lab test abnormality result too high too low indicator

Indication of lab panel test result, either too high or too low

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58701 Cardiac magnetic resonance cardiac output integer

Value in liters per minute of the patient's cardiac output (CO) as determined by cardiac magnetic resonance imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58760 Left ventricle outflow tract V1 doppler signal integral value

The value in centimeters of the V1 doppler signal integral of the left ventricle outflow tract (LVOT)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58768 Transmitral flow deceleration duration

Duration in milliseconds of the time required for transmitral flow deceleration

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58776 Biplane left atrial volume measurement

Measurement of the biplane left atrial volume (LAV)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58691 Dizziness near syncope history indicator

Indicator of whether the patient has a history of dizziness or of near syncope

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C21934 Pediatric Quality of Life Inventory (PedsQL) - Problem angry scale

Scale of problems with feeling mad, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Friedreich's Ataxia Friedreich's Ataxia
C21945 Pediatric Quality of Life Inventory (PedsQL) - Problem schoolwork difficulty scale

Scale of problems keeping up with schoolwork, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Friedreich's Ataxia Friedreich's Ataxia
C21955 Pediatric Quality of Life Inventory (PedsQL) - Problem run difficulty scale

Scale of problems with running, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Friedreich's Ataxia Friedreich's Ataxia
C21965 Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale

Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Friedreich's Ataxia Friedreich's Ataxia
C58710 Frataxin level status

Level of frataxin

Core Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58702 Cardiac magnetic resonance cardiac index value

Value of the patient's cardiac index (CI), defined as liters per minute of cardiac output per square meter of body surface area

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58761 Stroke volume value

Value in milliliters of the stroke volume

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58769 Tissue doppler mitral annulus lateral wall e prime velocity measurement

Measurement of early filling velocity of the tissue doppler lateral wall (e prime)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58777 Tissue doppler mitral annulus septal medial wall e prime velocity measurement

Measurement of the early filling velocity of the tissue doppler mitral annulus septal wall

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.