CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0923-C11079	C11079	Neonate delivery route type	Route of delivery of the neonate	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's/subject's medical history	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11062	C11062	Maternal delivery age value	Mother's age at the time she gave birth to the participant/subject	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C18802	C18802	Symptom first experienced other text	The free-text field related to 'Symptom first experienced text' specifying other text. First symptom of the disease/disorder experienced by the participant/subject	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C06358	C06358	Diabetes mellitus type	Type of diabetes mellitus	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10502	C10502	Symptom first experienced text	First symptom of the disease/disorder experienced by the participant/subject	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10501	C10501	Diagnosis initial age value	Age of the participant/subject when initially diagnosed with disease/disorder	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C10874	C10874	Holter exam maximum heart rate	Maximum heart rate measured during the Holter examination	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C10758	C10758	ECG WPW syndrome status	Status of whether ventricular preexcitation / Wolff-Parkinson-White syndrome (WPW) is present or absent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10729	C10729	Echocardiogram left atrial antero - posterior dimension measurement	Measurements of the dimensions of the left atrial antero - posterior measured by the echocardiogram	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10740	C10740	Echocardiogram left ventricle ejection fraction measurement	Fraction of blood pumped out of the left ventricles with each heart beat measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant/subject is ongoing	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C10875	C10875	Holter exam minimum heart rate	Minimum heart rate measured during the Holter examination	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10731	C10731	Echocardiogram right atrial enlargement status	Status of absence or presence of right atrial enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10741	C10741	Echocardiogram degree of aortic regurgitation status	Assessment with echocardiography of whether there is leaking of the aortic valve of the heart that causes blood to flow in the reverse direction during ventricular diastole, from the aorta into the left ventricle	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0922-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C10876	C10876	Holter exam mean heart rate	Mean heart rate measured during the Holter examination	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10732	C10732	Echocardiogram right ventricular enlargement status	Status of right ventricular enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10742	C10742	Echocardiogram degree of mitral regurgitation status	Assessment with echocardiography of whether there is a disorder of the heart in which the mitral valve does not close properly when the heart pumps out blood	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0922-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event	Supplemental	Family History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental-Highly Recommended	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 176 - 200 of 447

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.