CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 447

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0930-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental-Highly Recommended	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04515	C04515	ECG ventricular arrhythmia type	Type of ventricular arrythmia, if any, apparent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C18777	C18777	ECG heart rhythm result other text	The free-text field related to 'ECG heart rhythm result type' specifying other text. Type of heart rhythm apparent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C01541	C01541	Weight measurement	Measurement of participant's/subject's weight	Supplemental-Highly Recommended	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04502	C04502	ECG global result type	Result in qualitative terms of the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0929-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Core	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01707	C01707	Lab test abnormality significance type	Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C00724	C00724	APGAR five minute score	Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11080	C11080	Delivery modality type	Type of modality of the participant/subject's intrauterine orientation at delivery	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04510	C04510	ECG QRS duration	Duration in milliseconds (msec) of the QRS complex for the electrocardiogram (EKG) being recorded	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C18778	C18778	ECG ventricular arrhythmia other text	The free-text field related to 'ECG ventricular arrhythmia type' specifying other text. Type of ventricular arrythmia, if any, apparent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C00206	C00206	Family income supported persons count	Count of all people, including the participant/subject, who are supported by the household gross annual income reported	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01700	C01700	Specimen accession number	Number with which the specimen taken for the tests being reported was accessioned to the record storage facility	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04503	C04503	ECG heart rate	Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (EKG) being reported. Also called Heart Rate (HR)	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01708	C01708	Lab test performed indicator	Indicator of whether the lab test has been performed on the participant/subject	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04511	C04511	ECG QT interval	Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C10896	C10896	Pregnancy test performed indicator	Indicator as to whether or not a pregnancy test was performed on the participant/subject	Supplemental-Highly Recommended	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental-Highly Recommended	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental-Highly Recommended	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C01701	C01701	Lab specimen collection date and time	Date (and time if applicable and known) when the specimen was collected	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 101 - 125 of 447

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.