CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 51 - 75 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0934-C58704	C58704	Cardiac magnetic resonance right ventricular end diastolic volume integer	Integer for the value of the cardiac magnetic resonance imaging right ventricular end diastolic volume (RVEDV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58703	C58703	Cardiac magnetic resonance left ventricular mass volume ratio value	Value in grams per milliliter of the mass-to-volume ratio of the patient's left ventricle mass and end diastolic volume	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58702	C58702	Cardiac magnetic resonance cardiac index value	Value of the patient's cardiac index (CI), defined as liters per minute of cardiac output per square meter of body surface area	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58701	C58701	Cardiac magnetic resonance cardiac output integer	Value in liters per minute of the patient's cardiac output (CO) as determined by cardiac magnetic resonance imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58700	C58700	Cardiac magnetic resonance heart rate integer	Integer for the value in beats per minute of the patient's heart rate as determined by cardiac magnetic resonance imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58699	C58699	Cardiac magnetic resonance left ventricular stroke volume integer	Integer for the value in milliliters of the stroke volume of the left ventricle (LVSV) as determined through cardiac magnetic resonance	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58698	C58698	Cardiac magnetic resonance left ventricular end systolic volume integer	Integer for the value of the cardiac magnetic resonance imaging left ventricular end systolic volume (LVESV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58697	C58697	Cardiac magnetic resonance left ventricular end diastolic volume integer	Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58696	C58696	Cardiac magnetic resonance left ventricular mass index integer	Integer representing the cardiac magnetic resonance imaging left ventricular mass index	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58695	C58695	Circumstance Cardiac Magnetic Resonance performed reason	Reason for which the cardiac magnetic resonance imaging was performed	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C58694	C58694	Cardiac implant device location anatomic site	Anatomic site of the cardiac implant device	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C58693	C58693	Cardiac implant device place indicator	Indicator of whether a cardiac implant device was placed	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C58692	C58692	Holter exam duration day count	Count of whole or partial days elapsed during the Holder exam, up to 14 days	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58691	C58691	Dizziness near syncope history indicator	Indicator of whether the patient has a history of dizziness or of near syncope	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58690	C58690	Syncope history indicator	Indicator of whether the patient has a history of syncope	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58689	C58689	Chest discomfort cardiac cause history indicator	Indicator of whether the patient has a history of chest discomfort that is suggestive of a cardiac cause	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58688	C58688	Heart symptomatic arrhythmias ventricular origin history indicator	Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of ventricular origin	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58687	C58687	Heart symptomatic arrhythmias atrial origin history indicator	Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of atrial origin	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58686	C58686	Heart palpitation history indicator	Indicator of whether the patient has a history of heart palpitations	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58685	C58685	Patient ambulatory status	Status indicating whether the patient is ambulatory or not	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C58684	C58684	Circumstance ECG performed reason	Reason the electrocardiogram (ECG) was performed	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58683	C58683	Echocardiogram performed circumstance indicator	Circumstances under which this echocardiogram was performed should be indicated as either normal screening, changes in symptoms, provoked event, unknown or other. If there is another reason, specify the circumstance	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C52586	C52586	Cardiac index value	Value of the cardiac index, which is the cardiac output from the left ventricle divided by the subject/participant's body surface area	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.