CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

447 results.
Operations
Selected 22 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10513 Friedreich's ataxia length of GAA repeat allele 2 measurement

Length of the GAA repeat on allele 2 found through genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C18821 School placement other text

The free-text field related to 'School placement type' specifying other text. The description of the type of education the participant/subject receives with details of being with or without assistance

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C10878 Holter exam arrhythmias identified indicator

The indicator of whether any arrhythmias were identified during the Holter examination

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C10522 Speech affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's speech

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10699 Sitting ability status

Status that reflects the participant's/subject's current ability to sit

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C18804 Delayed motor milestones specify text

The free-text field related to 'Delayed motor milestones indicator'. Whether the participant/subject has a history of delayed motor milestones. If participant had delayed motor milestones, indicate type of delayed motor milestones

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10707 Walking difficulty age permanent support started value

Age of participant/subject when permanent support first needed walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10776 Echocardiogram left ventricle mass z-score value

Calculated z-score for the left ventricle mass (index) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11132 Heart rhythm result

The number of measured movements (rhythm) of a beating heart expressed in words rather than numbers

Supplemental Vital Signs Friedreich's Ataxia Friedreich's Ataxia
C10734 Echocardiogram left ventricle mass measurement

Left ventricle mass (index) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10716 Canine assistance use indicator

Indicator whether the participant/subject uses canine assistance for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C18824 History data not obtained other text

The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C11518 Bowel Control Scale (BWCS) - constipation 4 week scale

Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Friedreich's Ataxia Friedreich's Ataxia
C10514 Genetic diagnosis point mutation result

The result of the genetic testing revealed a point mutation describe the position and amino acid change

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10692 Speech level status

Status that reflects the participant's/subject's current level of speech ability

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10879 Holter exam arrhythmias identified type

Type of arrhythmias identified during the Holter examination

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C10523 Foot surgery indicator

The indicator of whether the participant/subject has had foot surgery

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10700 Bladder control status

Status that reflects the participant's/subject's current level of bladder control

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10754 ECG performed indicator

The indicator of whether an electrocardiogram (ECG) was performed on the participant/subject

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
447 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.