CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00713 Drug or substance current illicit use indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts

Supplemental-Highly Recommended Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00719 Tobacco product used type

Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00704 Alcohol drinking day average drinks consumed range

The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00707 Alcohol consume six or more drinks frequency

The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00700 Alcohol use stopped age value

Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00708 Alcohol use related to hospitalization indicator

Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00701 Tobacco use stopped age value

Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00702 Alcohol use started age value

Age in years when participant/subject started ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C00714 Behavioral history assessment date and time

Date (and time, if applicable and known) the participant/subject behavioral history was taken

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C06452 Neuromuscular scoliosis surgery treat indicator

Indicator of whether the scoliosis has been surgical treated

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10556 Pregnant ever indicator

Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term

Supplemental Pregnancy History Friedreich's Ataxia Friedreich's Ataxia
C11081 Delivery caesarean timing status

Status of the caesarean delivery

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C10558 Delivery or pregnancy termination last date and time

Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)

Supplemental Pregnancy History Friedreich's Ataxia Friedreich's Ataxia
C10677 ZIP partial code

First three digits of the zip code where the participant/subject currently lives

Exploratory Demographics Friedreich's Ataxia Friedreich's Ataxia
C17475 Cardiovascular history cardiac surgery type

Type of cardiac surgery or mechanical intervention the participant/subject underwent

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C17495 Delay motor milestone indicator

Indicator as to whether the participant/subject has or had delayed motor milestones, as diagnosed by a pediatrician or neurologist

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C17484 Psychiatric history clinical anxiety past year indicator

Indicator as to whether the participant/subject had clinical anxiety within the last year

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C19058 Psychiatric history psychotic diagnosis other text

The free-text field related to 'Psychiatric history psychotic diagnosis type' specifying other text. Type of psychotic disorder the participant/subject has been diagnosed with, if any

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C17511 Walking difficulty age need intermittent support indicator

Indicator used when participant/subject age when needing intermittent support for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
Displaying 276 - 300 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.