CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 715
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

 Core Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

 Core Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C18737 Medication prior or concomitant route type other text

The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication

 Supplemental Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

 Supplemental Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C02013 Medication prior or concomitant dose unit of measure UCUM code

Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)

 Supplemental Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

 Supplemental Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration

 Supplemental Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered

 Supplemental Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C59019 Birth weight measurement

Measurement in kilograms of the weight of a neonate at birth

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type' specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

 Supplemental Family History False Friedreich's Ataxia Friedreich's Ataxia
C18670 Subscribed drug or substance illicitly used category other text

The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental Behavioral History False Friedreich's Ataxia Friedreich's Ataxia
C17517 Wheelchair primary mobility means age indicator

Indicator used related age of participant/subject when they first began to use a wheelchair as their primary means of mobility

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10708 Wheelchair primary mobility means age value

Age of participant/subject when they first began to use a wheelchair as their primary means of mobility

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C59008 Hospital admission start date

Date the participant/subject was admitted to the hospital

 Supplemental Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C10607 Hospitalization past year count

Count of all hospitalizations the participant/subject had within the past year

 Supplemental Cardiac End Points False Friedreich's Ataxia Friedreich's Ataxia
C58779 Tissue doppler mitral annulus septal medial wall s prime velocity measurement

Measurement of the systolic wave velocity of the tissue doppler mitral annulus septal wall

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58778 Tissue doppler mitral annulus septal medial wall a prime velocity measurement

Measurement of the atrial filling velocity of the tissue doppler mitral annulus septal wall

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58777 Tissue doppler mitral annulus septal medial wall e prime velocity measurement

Measurement of the early filling velocity of the tissue doppler mitral annulus septal wall

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58776 Biplane left atrial volume measurement

Measurement of the biplane left atrial volume (LAV)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58775 Tricuspid annular plane systolic excursion measurement

Measurement of the echocardiogram tricuspid annular plane systolic excursion (TAPSE)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58774 Tissue doppler lateral tricuspid annulus annual systolic peak velocity measurement

Measurement of the annual systolic peak velocity of the tissue doppler lateral tricuspid annulus (Rv s')

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58773 Tissue Doppler lateral tricuspid annual late diastolic velocity measurement

Measurement of the annual late diastolic velocity of the tissue doppler lateral tricuspid annulus (Rv a')

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58772 Tissue Doppler lateral tricuspid annulus peak early diastolic velocity measurement

Measurement of the velocity of the tissue doppler lateral tricuspid annulus peak early diastolic (Rv e')

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58771 Tissue doppler mitral annulus lateral wall s prime velocity measurement

Measurement of the systolic wave velocity of the tissue doppler lateral wall (s prime)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58770 Tissue doppler mitral annulus lateral wall a prime velocity measurement

Measurement of the atrial filling velocity of the tissue doppler lateral wall (a prime)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.