CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 447

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0930-C01519	C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Core	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02025	C02025	Medication prior or concomitant RXNorm code	Code for name of the prior/concomitant agent or drug administered	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C18618	C18618	Neonatal problem other text	Specify in text the problems other than those listed that occurred during the neonatal period	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C18619	C18619	Delayed motor milestone specify text	Specify in text the motor milestones that are were delayed	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0927-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Exploratory	History Data Source and Reliability	False	Friedreich's Ataxia	Friedreich's Ataxia
F0920-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Core	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C22800	C22800	Pregnancy or delivery risk factor other indicator	Indicate whether there are other pregnancy/delivery risk factors	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C52586	C52586	Cardiac index value	Value of the cardiac index, which is the cardiac output from the left ventricle divided by the subject/participant's body surface area	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58683	C58683	Echocardiogram performed circumstance indicator	Circumstances under which this echocardiogram was performed should be indicated as either normal screening, changes in symptoms, provoked event, unknown or other. If there is another reason, specify the circumstance	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C58684	C58684	Circumstance ECG performed reason	Reason the electrocardiogram (ECG) was performed	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58685	C58685	Patient ambulatory status	Status indicating whether the patient is ambulatory or not	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58686	C58686	Heart palpitation history indicator	Indicator of whether the patient has a history of heart palpitations	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58687	C58687	Heart symptomatic arrhythmias atrial origin history indicator	Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of atrial origin	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58688	C58688	Heart symptomatic arrhythmias ventricular origin history indicator	Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of ventricular origin	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58689	C58689	Chest discomfort cardiac cause history indicator	Indicator of whether the patient has a history of chest discomfort that is suggestive of a cardiac cause	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58690	C58690	Syncope history indicator	Indicator of whether the patient has a history of syncope	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58691	C58691	Dizziness near syncope history indicator	Indicator of whether the patient has a history of dizziness or of near syncope	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C58692	C58692	Holter exam duration day count	Count of whole or partial days elapsed during the Holder exam, up to 14 days	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 301 - 325 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.