CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C11063	Parity maternal value	Number of live born children the participant's/subject's mother has delivered	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
C10719	Wheelchair use age started value	Age of the participant/subject when he/she began using a wheelchair	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
C10713	Walking cane or crutches pair use age started value	Age of the participant/subject when he/she began using two canes or crutches for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
C10770	Echocardiogram left ventricular end diastolic internal dimension z score	Calculated z-score for the left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C11133	History data not obtained reason	Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)	Exploratory	History Data Source and Reliability	False	Friedreich's Ataxia	Friedreich's Ataxia
C10510	Genetic diagnosis established in city name	City where the clinical laboratory that performed the genetic testing is located	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
C10518	Scoliosis last assessment date and time	Date (and time if applicable and known) the participant/subject was last assessed for scoliosis	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
C10709	Walking assistive device indicator	Indicator of whether the participant/subject uses an assistive device for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
C10756	ECG premature atrial contractions status	Status of absence or presence for an electrocardiographic finding of premature atrial contractions	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10738	Echocardiogram peak systolic pressure gradient measurement	Peak systolic pressure gradient measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10717	Canine assistance use age started value	Age of the participant/subject when he/she began using canine assistance	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
C11519	Bowel Control Scale (BWCS) - bowel control loss 4 week scale	Scale assessing how often the participant/subject lost control of bowels or had an accident in the past 4 weeks as part of the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
C10693	Swallowing level status	Status that reflects the participant's/subject's current level of swallowing ability	Supplemental-Highly Recommended	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
C10701	Walking difficulty level status	Status that reflects the participant's/subject's current level of walking difficulty	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
C10520	Vision affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's vision	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
C10771	Echocardiogram left ventricular end - systolic internal dimension z score	Calculated z-score for the left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C11134	History data reliability type	Overall assessment of the reliability of the medical/family history data obtained	Exploratory	History Data Source and Reliability	False	Friedreich's Ataxia	Friedreich's Ataxia
C10503	Neonatal problems indicator	Whether the participant/subject has a history of problems as an infant during the first month after birth	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
C11086	School placement type	The description of the type of education the participant/subject receives with details of being with or without assistance	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
C10511	Genetic diagnosis established in country name	Country where the clinical laboratory that performed the genetic testing is located	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
C10710	Walking 1 cane use indicator	Indicator whether the participant/subject uses one cane for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
C10757	ECG paroxysmal supraventricular tachycardia status	Status of presence or absence for an electrocardiographic finding of paroxysmal supraventricular tachycardia (PSVT)	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10718	Wheelchair use indicator	Indicator whether the participant/subject uses a wheelchair	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
C11520	Bowel Control Scale (BWCS) - bowel control almost lost 4 week scale	Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS)	Exploratory	Bowel Control Scale (BWCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
C10694	Cutting food or use of items functioning level status	Status that reflects the participant's/subject's current level of functioning for cutting food or use of items	Supplemental-Highly Recommended	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.