CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 715
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C11764 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination total value

The sum of the scores recorded for Part 3: Neurological Examination B. Upper Limb Coordination, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C10716 Canine assistance use indicator

Indicator whether the participant/subject uses canine assistance for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C12134 Friedreich's Ataxia Impact Scale (FAIS) - mood upset feeling scale

Scale used to determine how much the patient was bothered by feeling upset as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C18824 History data not obtained other text

The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

 Exploratory History Data Source and Reliability False Friedreich's Ataxia Friedreich's Ataxia
C11772 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system muscle atrophy right score

Score for right-side muscle atrophy in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C12142 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions introvert scale

Scale used to determine how much the patient was bothered by being more introverted as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C11780 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral deep tendon reflex right score

Score for right-side deep tendon reflex in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C11518 Bowel Control Scale (BWCS) - constipation 4 week scale

Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C11740 Friedreich's Ataxia Rating Scale (FARS) - daily activities swallowing score

Swallowing score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C10514 Genetic diagnosis point mutation result

The result of the genetic testing revealed a point mutation describe the position and amino acid change

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10692 Speech level status

Status that reflects the participant's/subject's current level of speech ability

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C11788 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability stance feet apart trial 3 duration

Duration in seconds of feet-apart stance trial 3 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C12033 Friedreich's Ataxia Impact Scale (FAIS) - body movement balance loss transferring scale

Scale used to determine how much the patient was bothered by loss of balance when transferring as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C11748 Friedreich's Ataxia Rating Scale (FARS) - daily activities total value

The sum of the scores recorded for Part 2: Activities of Daily Living section, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C10523 Foot surgery indicator

The indicator of whether the participant/subject has had foot surgery

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10700 Bladder control status

Status that reflects the participant's/subject's current level of bladder control

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C11756 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination nose-finger test right score

The score for the right finger in the nose-to-finger test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C12126 Friedreich's Ataxia Impact Scale (FAIS) - mood frustrated feeling scale

Scale used to determine how much the patient was bothered by feeling frustrated as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10754 ECG performed indicator

The indicator of whether an electrocardiogram (ECG) was performed on the participant/subject

 Supplemental Electrocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C12088 Friedreich's Ataxia Impact Scale (FAIS) - ADL toilet movement scale

Scale used to determine how much the patient was limited in his ability to get on or off the toilet seat as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C11803 Friedreich's Ataxia Rating Scale (FARS) - neurological exam gait device text

Text description of any device used for assistance during gait test in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C12048 Friedreich's Ataxia Impact Scale (FAIS) - body movement shaky legs scale

Scale used to determine how much the patient was bothered by shaky legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.