CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 715
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C12082 Friedreich's Ataxia Impact Scale (FAIS) - ADL longer time scale

Scale used to determine how much the patient was limited by the time it took to do things as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C11797 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability tandem stance mean duration score

Score for mean duration of tandem stance trials 1–3 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C12042 Friedreich's Ataxia Impact Scale (FAIS) - body movement restless legs scale

Scale used to determine how much the patient was bothered by restless legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C12090 Friedreich's Ataxia Impact Scale (FAIS) - ADL dress undress scale

Scale used to determine how much the patient was limited in his ability to get dressed or undressed as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10736 Echocardiogram left ventricular dilated indicator

Indicator of whether the echocardiogram shows that the participant/subject has a dilated left ventricle.

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C11805 Friedreich's Ataxia Rating Scale (FARS) - neurological exam gait score

Score for the gait test in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C12050 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing self-conscious voice scale

Scale used to determine how much the patient was bothered by being self-conscious about his voice as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives.

 Exploratory Demographics False Friedreich's Ataxia Friedreich's Ataxia
C12098 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning jerky walk scale

Scale used to determine how much the patient was bothered by walking jerky as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10768 Echocardiogram left ventricular end-diastolic posterior wall thickness z score

Calculated z-score for the left ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography.

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C11813 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 9 hole peg test right mean duration value

Mean duration in seconds for right-hand trials 1 and 2 of the 9-hole peg test in the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C12058 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing talking avoidance scale

Scale used to determine how much the patient was bothered by not talking as much or avoiding talking where possible as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C12106 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walk difficulty slippery uneven surface scale

Scale used to determine how much the patient was bothered by difficulty walking on a slippery or uneven surface as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C12066 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning bottle opening scale

Scale used to determine how much the patient was limited in his ability to open a bottle as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C12114 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning stiff legs scale

Scale used to determine how much the patient was bothered by stiff legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C12074 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning telephone use scale

Scale used to determine how much the patient was limited in his ability to use the telephone as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C10539 Diabetes first diagnosis age value

Value representing the age, in years, at which the participant/subject was first diagnosed with diabetes mellitus

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C11759 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upper limb coordination dysmetria left score

The score for the left finger in the dysmetria (fast nose-finger) test in the upper limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
C10711 Walking cane use age started value

Age of the participant/subject when he/she began using a cane for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C12129 Friedreich's Ataxia Impact Scale (FAIS) - mood fed up feeling scale

Scale used to determine how much the patient was bothered by feeling fed up as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS)

 Supplemental Friedreich's Ataxia Impact Scale (FAIS) True Friedreich's Ataxia Friedreich's Ataxia
C11082 Delivery extraction indicator

Indicator as to whether or not the participant's/subject's birth was assisted with an extraction method

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C11767 Friedreich's Ataxia Rating Scale (FARS) - neurological exam lower limb coordination heel shin slide test left score

Score for the left heel in the heel-along-shin slide test in the lower limb coordination section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

 Core Friedreich's Ataxia Rating Scale (FARS) True Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.