CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 715
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C12094 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning tripping stumbling walking scale

Scale used to determine how much the patient was bothered by tripping over or stumbling when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C10605 Cardiac MRI hyper - enhancement by LGE indicator

Whether myocardial hyper-enhancement was found by late gadolinium enhancement (LGE) by the cardiac Magnetic Resonance Imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C11809 Friedreich's Ataxia Rating Scale (FARS) - instrumental testing 10 second PATA trial 2 count

Count of times participant/subject is able to repeat word "pata" in 10-sec period for trial 2 of the PATA Rate test of the instrumental testing section, as part of the Friedreich's Ataxia Rating Scale (FARS)

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C12054 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing telephone talking scale

Scale used to determine how much the patient was bothered by talking on the telephone as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C12102 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walking concentration scale

Scale used to determine how much the patient was bothered by having to concentrate on walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C12062 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning intricate things dexterity scale

Scale used to determine how much the patient was limited in his ability to do intricate things as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C10681 In-home assistance for remembering, decision making, or judgment duration

Amount of time per day the subject/participant requires the help of an assistant for decision making/remembering

Supplemental Social Status Friedreich's Ataxia Friedreich's Ataxia
C12110 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning leg movement difficulty scale

Scale used to determine how much the patient was bothered by difficulty moving legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C12070 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning typing dexterity scale

Scale used to determine how much the patient was limited in his ability to type as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C12118 Friedreich's Ataxia Impact Scale (FAIS) - isolation leisure activities give up scale

Scale used to determine how much the patient was bothered by giving up on leisure activities as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C12078 Friedreich's Ataxia Impact Scale (FAIS) - ADL standing scale

Scale used to determine how much the patient was limited in his ability to stand as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C11793 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability feet together stance mean duration score

Score for mean duration of feet-together stance trials 1-3 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C12086 Friedreich's Ataxia Impact Scale (FAIS) - ADL effort scale

Scale used to determine how much the patient was limited by the amount of effort it took to do things as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C11801 Friedreich's Ataxia Rating Scale (FARS) - neurological exam upright stability dominant foot stance mean duration score

Score for mean duration of dominant-foot stance trials 1-3 in the upright stability section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C12046 Friedreich's Ataxia Impact Scale (FAIS) - body movement finger movement lack scale

Scale used to determine how much the patient was bothered by the lack of finger movements as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C11771 Friedreich's Ataxia Rating Scale (FARS) - neurological exam lower limb coordination total value

The sum of the scores recorded for Part 3: Neurological Examination C. Lower Limb Coordination, as part of the Friedreich's Ataxia Rating Scale (FARS)

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C12141 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions embarrassed feel scale

Scale used to determine how much the patient was bothered by feeling embarrassed as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS)

Supplemental Friedreich's Ataxia Impact Scale (FAIS) Friedreich's Ataxia Friedreich's Ataxia
C10505 Delayed motor milestones indicator

Whether the participant/subject has a history of delayed motor milestones. If participant had delayed motor milestones, indicate type of delayed motor milestones

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11779 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral nerve system position sense left score

Score for left-side position sense in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS)

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C11517 Bladder Control Scale (BLCS) - scores sum value

Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Friedreich's Ataxia Friedreich's Ataxia
C11739 Friedreich's Ataxia Rating Scale (FARS) - daily activities speech score

Speech score for ataxia in subject/participant, as part of the Friedreich's Ataxia Rating Scale (FARS)

Core Friedreich's Ataxia Rating Scale (FARS) Friedreich's Ataxia Friedreich's Ataxia
C10513 Friedreich's ataxia length of GAA repeat allele 2 measurement

Length of the GAA repeat on allele 2 found through genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
Displaying 1 - 25 of 715

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.