CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 51 - 75 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0921-C17475	C17475	Cardiovascular history cardiac surgery type	Type of cardiac surgery or mechanical intervention the participant/subject underwent	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C04500	C04500	ECG atrial arrhythmia type	Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C11993	C11993	Timed 25-Foot Walk (T25FW) - bilateral assistance device type	Type of assistive device used by the participant/subject during the assessment, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C10879	C10879	Holter exam arrhythmias identified type	Type of arrhythmias identified during the Holter examination	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11933	C11933	Modified Fatigue Impact Scale (MFIS) - total score	Total MFIS score (range: 0-84)	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58760	C58760	Left ventricle outflow tract V1 doppler signal integral value	The value in centimeters of the V1 doppler signal integral of the left ventricle outflow tract (LVOT)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C11998	C11998	Timed 25-Foot Walk (T25FW) - trial 2 duration	The time it takes the participant/subject to walk 25 feet, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0950-C11965	C11965	Tardieu Scale movement resistance score	The semi-quantitative score describing relative resistance to passive limb movement or occurrence of spasticity observed while administering the Tardieu Scale assessment to measure the reaction of muscles of a tested limb in a participant/subject	Exploratory	Tardieu Scale	False	Friedreich's Ataxia	Friedreich's Ataxia
F0942-C11516	C11516	Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity	The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS)	Exploratory	Bladder Control Scale (BLCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0942-C11513	C11513	Bladder Control Scale (BLCS) - lost control bladder 4 week scale	The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)	Exploratory	Bladder Control Scale (BLCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0942-C11515	C11515	Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale	The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)	Exploratory	Bladder Control Scale (BLCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0942-C11514	C11514	Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale	The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)	Exploratory	Bladder Control Scale (BLCS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10514	C10514	Genetic diagnosis point mutation result	The result of the genetic testing revealed a point mutation describe the position and amino acid change	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C10604	C10604	Cardiac MRI relative wall thickness measurement	The relative wall thickness measured by cardiac Magnetic Resonance Imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0950-C11964	C11964	Tardieu Scale relative velocity rate	The relative velocity (for a repeated measure) during administration of the Tardieu Scale assessment to measure muscle reaction through evaluation of spasticity and resistance to passive limb movement in a participant/subject	Exploratory	Tardieu Scale	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Core	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F0930-C11132	C11132	Heart rhythm result	The number of measured movements (rhythm) of a beating heart expressed in words rather than numbers	Supplemental	Vital Signs	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58759	C58759	Left ventricle outflow tract diameter measurement	The measurement in centimeters of the diameter of the left ventricular outflow tract	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10516	C10516	Scoliosis maximum spine curvature measurement	The maximum curvature of the spine in degrees for a participant/subject who has been diagnosed with scoliosis	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.