CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10602 Cardiac MRI ejection fraction measurement

Measurement of the ejection fraction percentage obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C10740 Echocardiogram left ventricle ejection fraction measurement

Measurement of the fraction of blood pumped out of the left ventricles with each heart beat obtained by echocardiography

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C10729 Echocardiogram left atrial antero - posterior dimension measurement

Measurement of the left atrial antero-posterior dimension obtained by echocardiography

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

 Supplemental-Highly Recommended Vital Signs False Friedreich's Ataxia Friedreich's Ataxia
C58771 Tissue doppler mitral annulus lateral wall s prime velocity measurement

Measurement of the systolic wave velocity of the tissue doppler lateral wall (s prime)

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58779 Tissue doppler mitral annulus septal medial wall s prime velocity measurement

Measurement of the systolic wave velocity of the tissue doppler mitral annulus septal wall

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C58772 Tissue Doppler lateral tricuspid annulus peak early diastolic velocity measurement

Measurement of the velocity of the tissue doppler lateral tricuspid annulus peak early diastolic (Rv e')

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C01028 Physical exam condition SNOMED CT code

Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)

 Supplemental Physical Examination False Friedreich's Ataxia Friedreich's Ataxia
C10875 Holter exam minimum heart rate

Minimum heart rate measured during the Holter examination

 Supplemental Holter Exam False Friedreich's Ataxia Friedreich's Ataxia
C11062 Maternal delivery age value

Mother's age at the time she gave birth to the participant/subject

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C10509 Genetic diagnosis established by lab name

Name of the clinical laboratory who performed the genetic testing

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

 Core Prior and Concomitant Medications False Friedreich's Ataxia Friedreich's Ataxia
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C17864 Timed 25-Foot Walk (T25FW) - trial number

Number assigned for identification to the trial currently being assessed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

 Supplemental Timed 25-Foot Walk (T25-FW) False Friedreich's Ataxia Friedreich's Ataxia
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

 Exploratory Prenatal and Perinatal History False Friedreich's Ataxia Friedreich's Ataxia
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Supplemental-Highly Recommended General Core False Friedreich's Ataxia Friedreich's Ataxia
C01700 Specimen accession number

Number with which the specimen taken for the tests being reported was accessioned to the record storage facility

 Core Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

 Exploratory History Data Source and Reliability False Friedreich's Ataxia Friedreich's Ataxia
C10738 Echocardiogram peak systolic pressure gradient measurement

Peak systolic pressure gradient measured with echocardiography

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C11992 Timed 25-Foot Walk (T25FW) - unilateral assistance device type

Range, in sides of the body, for which the participant/subject used an assistive device during the assessment, as part of the Timed 25-Foot Walk (T25FW)

 Supplemental Timed 25-Foot Walk (T25-FW) False Friedreich's Ataxia Friedreich's Ataxia
C04503 ECG heart rate

Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)

 Supplemental Electrocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

 Supplemental-Highly Recommended Vital Signs False Friedreich's Ataxia Friedreich's Ataxia
C10697 Fall rate

Rate that reflects the participant's/subject's current frequency of falling

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C58695 Circumstance Cardiac Magnetic Resonance performed reason

Reason for which the cardiac magnetic resonance imaging was performed

 Supplemental Cardiac Magnetic Resonance Imaging False Friedreich's Ataxia Friedreich's Ataxia
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

 Supplemental-Highly Recommended Laboratory Tests False Friedreich's Ataxia Friedreich's Ataxia
Displaying 201 - 225 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.