CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0928-C18802	C18802	Symptom first experienced other text	The free-text field related to 'Symptom first experienced text' specifying other text. First symptom of the disease/disorder experienced by the participant/subject	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10505	C10505	Delayed motor milestones indicator	Whether the participant/subject has a history of delayed motor milestones. If participant had delayed motor milestones, indicate type of delayed motor milestones	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10513	C10513	Friedreich's ataxia length of GAA repeat allele 2 measurement	Length of the GAA repeat on allele 2 found through genetic testing	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10522	C10522	Speech affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's speech	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C18804	C18804	Delayed motor milestones specify text	The free-text field related to 'Delayed motor milestones indicator'. Whether the participant/subject has a history of delayed motor milestones. If participant had delayed motor milestones, indicate type of delayed motor milestones	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10506	C10506	Genetic diagnosis established indicator	Whether a genetic diagnosis for the disease/disorder was established	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10514	C10514	Genetic diagnosis point mutation result	The result of the genetic testing revealed a point mutation describe the position and amino acid change	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10523	C10523	Foot surgery indicator	The indicator of whether the participant/subject has had foot surgery	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C06452	C06452	Neuromuscular scoliosis surgery treat indicator	Indicator of whether the scoliosis has been surgical treated	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10507	C10507	Genetic diagnosis confirmation type	Manner in which genetic diagnosis was confirmed	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10515	C10515	Scoliosis diagnosis indicator	The indicator of whether the participant/subject has been diagnosed with scoliosis	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10524	C10524	Ambulation affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's ambulatory ability	Core	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17472	C17472	Cardiovascular history arrhythmia ventricular tachycardia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of ventricular tachycardia	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17480	C17480	Diabetes mellitus complications type	Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17489	C17489	Psychotic disorder indicator	Indicator as to whether the participant/subject has had a psychotic disorder diagnosis	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Core	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C10539	C10539	Diabetes first diagnosis age value	Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17464	C17464	Cardiovascular history abnormal echocardiogram left ventricular hypertrophy indicator	Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG) specifically exhibiting left ventricular hypertrophy (LVH)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17473	C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17482	C17482	Diabetes mellitus indicator	Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C10541	C10541	Diabetes treatment type	Type of treatment the participant/subject is receiving or has received for diabetes mellitus	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17465	C17465	Cardiovascular history abnormal echocardiogram other text	Text description of any abnormal characteristics other than left ventricular hypertrophy (LVH), or decreased left ventricular (LV) function that the participant/subject has ever exhibited on an echocardiogram (ECG)	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17474	C17474	Cardiovascular history cardiac surgery indicator	Indicator as to whether the participant/subject has had cardiac surgery or mechanical intervention	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.