CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11929 Modified Fatigue Impact Scale (MFIS) - rest more often longer score

Scale for having needed to rest more often or for longer periods as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C17827 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble concentrating scale

Scale for having had trouble concentrating as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11914 Modified Fatigue Impact Scale (MFIS) - pace physical activity score

Scale for having paced self in the physical activities as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C17828 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

 Supplemental Modified Fatigue Impact Scale (MFIS) False Friedreich's Ataxia Friedreich's Ataxia
C06452 Neuromuscular scoliosis surgery treat indicator

Indicator of whether the scoliosis has been surgical treated

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10507 Genetic diagnosis confirmation type

Manner in which genetic diagnosis was confirmed

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10524 Ambulation affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's ambulatory ability

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10500 Symptom onset age value

Age when symptoms first experienced

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10508 Genetic diagnosis established date and time

Date (and time if applicable and known) the genetic diagnosis was established

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10516 Scoliosis maximum spine curvature measurement

The maximum curvature of the spine in degrees for a participant/subject who has been diagnosed with scoliosis

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10526 Assistive walking device started use age value

Age when the participant/subject began using the assistive walking device

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10501 Diagnosis initial age value

Age of the participant/subject when initially diagnosed with disease/disorder

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10509 Genetic diagnosis established by lab name

Name of the clinical laboratory who performed the genetic testing

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10517 Scoliosis maximum spine curvature anatomic site

The location of the maximum spine curvature for a participant/subject who has been diagnosed with scoliosis

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10502 Symptom first experienced text

First symptom of the disease/disorder experienced by the participant/subject

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10510 Genetic diagnosis established in city name

City where the clinical laboratory that performed the genetic testing is located

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10518 Scoliosis last assessment date and time

Date (and time if applicable and known) the participant/subject was last assessed for scoliosis

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C18618 Neonatal problem other text

Specify in text the problems other than those listed that occurred during the neonatal period

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10503 Neonatal problems indicator

Whether the participant/subject has a history of problems as an infant during the first month after birth

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10511 Genetic diagnosis established in country name

Country where the clinical laboratory that performed the genetic testing is located

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10520 Vision affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's vision

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
Displaying 126 - 150 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.