CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58684 Circumstance ECG performed reason

Reason the electrocardiogram (ECG) was performed

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04503 ECG heart rate

Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04511 ECG QT interval

Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (ECG/EKG) being recorded

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10757 ECG paroxysmal supraventricular tachycardia status

Status of presence or absence for an electrocardiographic finding of paroxysmal supraventricular tachycardia (PSVT)

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04504 ECG heart rhythm result type

Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C04512 ECG QTc interval

Interval in milliseconds (msec) as corrected for the period from the start of the Q wave to the end of the T wave (QTc interval) for the electrocardiogram (ECG/EKG) being recorded

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Friedreich's Ataxia Friedreich's Ataxia
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Friedreich's Ataxia Friedreich's Ataxia
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Friedreich's Ataxia Friedreich's Ataxia
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C17501 Medical history information source family text

Text specifying the relation of the family member, from whom medical/family history information was obtained, to the participant

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C18824 History data not obtained other text

The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
Displaying 176 - 200 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.