CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Friedreich's Ataxia Friedreich's Ataxia
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Exploratory Demographics Friedreich's Ataxia Friedreich's Ataxia
C10677 ZIP partial code

First three digits of the zip code where the participant/subject currently lives

Exploratory Demographics Friedreich's Ataxia Friedreich's Ataxia
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Exploratory Demographics Friedreich's Ataxia Friedreich's Ataxia
C10771 Echocardiogram left ventricular end - systolic internal dimension z score

Calculated z-score for the left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58759 Left ventricle outflow tract diameter measurement

The measurement in centimeters of the diameter of the left ventricular outflow tract

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58767 Late diastolic transmitral flow velocity measurement

Measurement in centimeters per second of the late diastolic transmitral flow velocity (A)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58775 Tricuspid annular plane systolic excursion measurement

Measurement of the echocardiogram tricuspid annular plane systolic excursion (TAPSE)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10742 Echocardiogram mitral valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10723 Echocardiogram completed indicator

Whether an echocardiogram was performed on the participant/subject

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10732 Echocardiogram right ventricular enlargement status

Status of right ventricular enlargement on the echocardiogram

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10772 Echocardiogram left atrial antero - posterior dimension z-score

Z-score calculated for the left atrial antero - posterior dimension measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58760 Left ventricle outflow tract V1 doppler signal integral value

The value in centimeters of the V1 doppler signal integral of the left ventricle outflow tract (LVOT)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58768 Transmitral flow deceleration duration

Duration in milliseconds of the time required for transmitral flow deceleration

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58776 Biplane left atrial volume measurement

Measurement of the biplane left atrial volume (LAV)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10743 Echocardiogram tricuspid valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the tricuspid valve as assessed by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10724 Echocardiogram perform date and time

Date (and time, if applicable and known) the echocardiography was performed

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10733 Echocardiogram right ventricular systolic dysfunction status

Status of right ventricular systolic dysfunction on the echocardiogram

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10776 Echocardiogram left ventricle mass z-score value

Calculated z-score for the left ventricle mass (index) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58761 Stroke volume value

Value in milliliters of the stroke volume

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58769 Tissue doppler mitral annulus lateral wall e prime velocity measurement

Measurement of early filling velocity of the tissue doppler lateral wall (e prime)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58777 Tissue doppler mitral annulus septal medial wall e prime velocity measurement

Measurement of the early filling velocity of the tissue doppler mitral annulus septal wall

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10744 Echocardiogram left ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10725 Echocardiogram left ventricular posterior wall thickness end diastole measurement

Measurement of left ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10734 Echocardiogram left ventricle mass measurement

Left ventricle mass (index) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
Displaying 101 - 125 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.