CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
C10676	Country of residence code	Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Exploratory	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Exploratory	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
C10731	Echocardiogram right atrial enlargement status	Status of absence or presence of right atrial enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10741	Echocardiogram degree of aortic regurgitation status	Assessment with echocardiography of whether there is leaking of the aortic valve of the heart that causes blood to flow in the reverse direction during ventricular diastole, from the aorta into the left ventricle	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10771	Echocardiogram left ventricular end - systolic internal dimension z score	Calculated z-score for the left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C58759	Left ventricle outflow tract diameter measurement	The measurement in centimeters of the diameter of the left ventricular outflow tract	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C58767	Late diastolic transmitral flow velocity measurement	Measurement in centimeters per second of the late diastolic transmitral flow velocity (A)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C58775	Tricuspid annular plane systolic excursion measurement	Measurement of the echocardiogram tricuspid annular plane systolic excursion (TAPSE)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10723	Echocardiogram completed indicator	Whether an echocardiogram was performed on the participant/subject	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10732	Echocardiogram right ventricular enlargement status	Status of right ventricular enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10742	Echocardiogram degree of mitral regurgitation status	Assessment with echocardiography of whether there is a disorder of the heart in which the mitral valve does not close properly when the heart pumps out blood	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10772	Echocardiogram left atrial antero - posterior dimension z-score	Calculated z-score for the left atrial antero - posterior dimension measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C58760	Left ventricle outflow tract V1 doppler signal integral value	The value in centimeters of the V1 doppler signal integral of the left ventricle outflow tract (LVOT)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C58768	Transmitral flow deceleration duration	Duration in milliseconds of the time required for transmitral flow deceleration	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C58776	Biplane left atrial volume measurement	Measurement of the biplane left atrial volume (LAV)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10743	Echocardiogram degree of tricuspid regurgitation status	Assessment with echocardiography of whether there is the failure of the heart's tricuspid valve to close properly during systole	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10724	Echocardiogram performed date and time	Date (and time, if applicable and known) the echocardiography was performed	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10733	Echocardiogram right ventricular systolic dysfunction status	Status of right ventricular systolic dysfunction on the echocardiogram	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10776	Echocardiogram left ventricle mass z-score value	Calculated z-score for the left ventricle mass (index) measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C58761	Stroke volume value	Value in milliliters of the stroke volume	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C58769	Tissue doppler mitral annulus lateral wall e prime velocity measurement	Measurement of early filling velocity of the tissue doppler lateral wall (e prime)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C58777	Tissue doppler mitral annulus septal medial wall e prime velocity measurement	Measurement of the early filling velocity of the tissue doppler mitral annulus septal wall	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
C10744	Echocardiogram left ventricle fractional shortening measurement	Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension assessed with echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 101 - 125 of 447

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.