CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 447

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0953-C58685	C58685	Patient ambulatory status	Status indicating whether the patient is ambulatory or not	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C59007	C59007	American Heart Association heart failure stage classification status	Status of the participant's/subject's stage heart failure according to the American Heart Association (AHA) Stage of Heart Failure classifications	Supplemental	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C10605	C10605	Cardiac MRI hyper - enhancement by LGE indicator	Whether myocardial hyper-enhancement was found by late gadolinium enhancement (LGE) by the cardiac Magnetic Resonance Imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58701	C58701	Cardiac magnetic resonance cardiac output integer	Value in liters per minute of the patient's cardiac output (CO) as determined by cardiac magnetic resonance imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C17506	C17506	Cardiac MRI result comment text	Free-text field describing the results comments on the cardiac magnetic resonance imaging (MRI) results	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58702	C58702	Cardiac magnetic resonance cardiac index value	Value of the patient's cardiac index (CI), defined as liters per minute of cardiac output per square meter of body surface area	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58695	C58695	Circumstance Cardiac Magnetic Resonance performed reason	Reason for which the cardiac magnetic resonance imaging was performed	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58703	C58703	Cardiac magnetic resonance left ventricular mass volume ratio value	Value in grams per milliliter of the mass-to-volume ratio of the patient's left ventricle mass and end diastolic volume	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58696	C58696	Cardiac magnetic resonance left ventricular mass index integer	Integer representing the cardiac magnetic resonance imaging left ventricular mass index	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58704	C58704	Cardiac magnetic resonance right ventricular end diastolic volume integer	Integer for the value of the cardiac magnetic resonance imaging right ventricular end diastolic volume (RVEDV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58697	C58697	Cardiac magnetic resonance left ventricular end diastolic volume integer	Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58705	C58705	Cardiac magnetic resonance right ventricular end systolic volume integer	Integer for the value of the cardiac magnetic resonance imaging right ventricular end systolic volume (RVESV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C10602	C10602	Cardiac MRI ejection fraction measurement	Measurement of the ejection fraction percentage obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58698	C58698	Cardiac magnetic resonance left ventricular end systolic volume integer	Integer for the value of the cardiac magnetic resonance imaging left ventricular end systolic volume (LVESV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58706	C58706	Cardiac magnetic resonance right ventricular stroke volume integer	Integer for the value in milliliters of the stroke volume of the right ventricle (RVSV) as determined through cardiac magnetic resonance	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C10603	C10603	Cardiac MRI left ventricle mass measurement	Measurement in grams of the mass of the left ventricle as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58699	C58699	Cardiac magnetic resonance left ventricular stroke volume integer	Integer for the value in milliliters of the stroke volume of the left ventricle (LVSV) as determined through cardiac magnetic resonance	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58707	C58707	Cardiac magnetic resonance right ventricular ejection fraction integer	Integer representing the patient's right ventricular ejection fraction using the right ventricular stroke volume as a percentage of the right ventricular end diastolic volume	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C10604	C10604	Cardiac MRI relative wall thickness measurement	The relative wall thickness measured by cardiac Magnetic Resonance Imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58700	C58700	Cardiac magnetic resonance heart rate integer	Integer for the value in beats per minute of the patient's heart rate as determined by cardiac magnetic resonance imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58708	C58708	Cardiac magnetic resonance native T1 relaxation time duration	Duration in milliseconds required for native T1 relaxation as determined by cardiac magnetic resonance imaging	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C00028	C00028	Language spoken fluent ISO code	Code (ISO 639-2)for each language that the participant/subject speaks fluently	Supplemental	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia
F0919-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Friedreich's Ataxia	Friedreich's Ataxia

Displaying 76 - 100 of 447

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.